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EndocrineWeb Community Advice

Post Thyroidectomy Low Blood Pressure/Sleepiness

From: Mary777 - 7 years 9 weeks ago

I am a 50 yr old woman, perimenopause, and I was diagnosed two months ago with papillary thyroid cancer, 1cm, and 5 days ago had a total thyroidectomy.

Prior to the surgery for the past 3 months I have had wide swings in blood pressure, sometimes in the same day ranging from 190/101 down to 81/49. Along with and maybe related to the blood pressure is most of the day I am extremely fatigued and sleepy. This is after a good nights sleep. It has been so bad that I cannot drive or work because when the sleepiness hits I cannot stay awake for several hours. I walk and talk like I'm drunk and mentally impaired. I was admitted to the ER twice the first month - once for low blood pressure and once for high blood pressure. Both times they could not come up with a diagnosis, except they did find the thyroid cancer and said it "might" be the reason for the other symptoms.

Many different specialists have tried to figure out why I have this swing in blood pressure including the cardiologist, endocrinologist, neurologist, along with my GP. Many different lab tests, full panel of blood tests, autonomic testing, EKG, EEG, MRI, CAT scans, mammogram, Adrenal Gland/Pheochromocytoma etc have been negative.

I was hoping that the thyroidectomy would cure this blood pressure and fatigue problem, and it may have helped with the high blood pressure, but I still am having low blood pressure issues and most of the day unable to function with the fatigue, sleepiness, and confusion. The past two days I have been OK until about 10:00am. I have taken my 100 mcg Synthroid at about 7:00am each day. But by 11:00am I have been crashing to the point that I turn pale, slur my words, and will pass out if I do not take a nap.

Does anyone have any experience with this type of problem and what could be causing the low blood pressure and major daytime sleepiness? All of the doctors that I have seen are stumped on this maybe someone out there has some ideas on how I should proceed, since the specialists are out of ideas. The endocronologist is confident that the cancer was contained since the the neck ultrasound and in surgery the lymph nodes looked good.

Any advice is appreciated.

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