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EndocrineWeb Community Advice
Posted in: MEN 2A.

High Calcitonin, Low Thyroglobulin

From: Kellyg - 8 years 11 weeks ago

I had my thyroid removed in 1988 due to a diagnosis of MEN2. My Calcitonin levels have been on the rise for 5 years, which would typically mean a reoccurance; however, my thyroglobulin levels are within normal range. Has anyone every experienced this and, if so, what was diagnosis/treatment?

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Hi Kelly,

I just happened across this site. I have not had a Thyrogobuolin test that I recall, but I do have the gene.

I suggest you check out www.iamend.org
It is a wonderful site for people with MEN, I bet you will find an answer there.

VI

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My son has the exact same thing, and his endocrinologist said that there may be a pheochromocytoma growing on or in the adrenal glands. Have they checked that for you?

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