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EndocrineWeb Community Advice
Posted in: MEN 1.

MEN1 Friends??

From: MEN1husband - 9 years 13 weeks ago

I am the husband of a fantastic, loving women who has lived with managing MEN1 since 9 years old. She is now 39 and we struggle with many different situations everyday of our lives due to this disorder. It is difficult for me to understand what she has to live with on a daily basis, and she has confessed to me a few times of how devastating it is to not have anyone to talk to that also has MEN1 and can understand her daily trials. I have joined this network for that purpose. I would like to find people with MEN1 for her. I'm sure it will also help me in ways I have not yet thought of.

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2 Responses

Is this good advice?

I'm Sofia, I'm 19 years old and I'm Brazilian. I've discovered that I have MEN1 2 years ago and since then I've been doing lots of tests to controll the MEN1.
I've also made a surgery due to the hyperparathyroidism related to MEN1.

Is this good advice?

hiya im 33yrs old i found out this year that i have men 1. i still dont really understand what this means for me and still waiting for the hospital to start the test that they keep going on about that are urgent. ct scans and fasting blood tests. my moms has this also but none of the symptons but was told at 19 she didnt have it but this year we found out the test results were wrong. she has 4 children, im the eldest, me and my sister have got it and we are waiting for my 2 brothers results.