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EndocrineWeb Community Advice

Need advice on my irregular TSH.

From: NH Gigi - 2 years 48 weeks ago

I hope someone can guide me. Or that I'm not making a mountain out of a molehill!

I was diagnosed hypo in my early 20s. (So approximately 25 years ago, as I'm now 49). For the last 5 years I have not had levels in the correct range. (Sometimes as high as in the 40s and currently my range for the last 3 blood test is registering <.01). My primary dr. just keeps adjusting my Synthroid. Up and down, up and down.

In the summer I was in the hospital for a 3 day stay and a treating dr. did some blood work. He asked me if I was being treated for thyroid cancer. The shocked look on my face made him quickly back pedal and he asked if I was being treated by an endocrinologist. I've never seen one, nor have I ever had any other tests, other than just TSH, TSH, T3 and T4 tests.

After my hospital stay, and at the encouragement of 2 friends that have had thyroid cancer diagnosis in different aspects of their lives, I asked for a referral to an endocrinologist. I know that being hypothyroid does not mean I will get thyroid cancer. But after the words were "thrown out to me" by a Dr. at our hospital, unfortunately the thoughts lingered.

My primary dr. gave me a referral for January of 2019 to see the endocrinology department. (I've been waiting since August).

My question, should I be more persistent? Should I call my primary and ask him to do anything else? My last bloodwork on 9/25 was still <.01 and I expect that next week will be the same. Should I call someone else?

Do I have a reason to be concerned at this point?

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