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Posted in: Hyperthyroidism.

Hyperthyroid and weight GAIN

From: krall - 8 years 41 weeks ago

Hi,just wanted to find out what everone else thinks about weight gain. When I first found out that I had a hyper thyroid I weighed 120 lbs. NOW after about a year I can't seem to loose any weight. I am up to 150 and I am sick of gaining more even though I work out like crazy. Doesn't seem fair and I need some advice please!

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62 Responses

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Hi, in answer to the holistic question, I am 55 and was diagnosed hyperthyroid a year ago. I was already and overweight which may have been due to being hyperthryoid condition without knowing it. Was also having menopausal symptoms which is what I assumed were mostly the cause of my issues. I had severe heart palps/increased heart rate, tremors, insomnia, heat insensitivity, diahrria. One day, was fighting fainting as blood felt choked from getting to my head so I took myself to ER where I waited two hours. By then the symptoms were settling. They did an EKG which was normal but in any case an endocrinologist was called in and he believed me that even though the EKG looked fine, that I was truly in distress so he ordered full blood work which confirmed it all. I've since adopted him. My TSH was 0.01 and other numbers were also not good. Clearly HYPERthryoid. I was put on Tapazole which wasn't controlling the heart rate so changed to polythiouricinal or whatever the heck it is. Initially taking 2 50mg 3x/day or 6/day in total. I am not one to take medication so I researched and fortunately have an endrocrinologist who is willing to work with me if other reasonable and holistic options available. I found a holistic product by mailorder for hyperthryoid. While there are gazillions of formulas for hypothyroid, there are very few for hyperthryoid. Anyway, I checked with the holistic provider whether I could take it along with the medication and they said yes. I also checked with my naturopath and the endorcrinologist and all agreed it should be okay. I went from 6 polythi.... whatever per day to 2 per day while taking the holistic formula. My symptoms have lessened to a great degree, some days/nights are worse than others, but overall I feel 75% better and less than a year later my TSH is up to 1.99 which is actually heading into hypothyroid territory so may have to tweak things a bit. As far as weight gain goes, I did gain 20 lbs which isn't huge compared to some entries here but still at my age and on top of my already overweight, it was not appreciated. I have taken a milk thistle supplement (avail at most any health food store) to support my liver because these thyroid meds are absolutely terrible to the liver. I would NEVER do radioactive iodine or surgery. This is everyone's choice to make for themselves for their own circumstances but for me its not a choice. I would suggest anyone with hyperthryoidism eat a healthy well balanced diet, avoid white foods including sugar as they are only going to feed the illness. Stop using chemical laden products whether it is shampoo to hand wash to cosmetics. REDUCE the toxic load on your body. Thats where to start. Hope this helps someone.

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I have Grave's disease. I had the radioactive iodine treatment to kill my thryroid. I only weighed about 140 lbs. before, but now I weight 183 lbs. The doctor told me the most I would gain is 5 to 10 pounds. The doctor told me there is something else wrong and told me to see a family practioner, so I did. They performed all kinds of tests, but nothing is wrong. Doctors think it's because I am going through menopause. I get hot and cold at nights. The doctors put me on Metformin, but i've only been on it for a week. I bloat out like I am eight or nine months pregnant. This is really embarrassing. If I would have know this about letting them kill my thyroid, I would have never let them give me that pill. What do you think?

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Yeah, I have also seen this news in some websites but last week, I had checked and Read about Hyperthyroidism and Treatment is done and Maybe this method will work.

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I know this is an old thread but just seeing that i am not alone with this weight gain issue is slightly comforting, however also, very depressing because it seems as though no one has figured out a good coarse to alleviate it. I have Graves disease. On top of that I am a type 1 diabetic. I have had diabetes since i was 9 years old. I have had the Graves since 2006 so 8 years. When I was first diagnosed i was losing weight. I had been working out and being more active so I assumed that was the reason behind the weight loss. I quickly found out after being diagnosed that it was the disease. I was put on Tapazole and gained 20lbs immediately! I have been on nd off the Tapazole because my endocrinologist tests me often. I went from 140 to 192. I am disgusted with myself! I exercise, I went Gluten free (which; by the way; is something the doctor said was good because most patients with autoimmune issue eventually gain a gluten intolerance). I am beyond frustrated. I didn't even weigh this much when I had my 2 children. There has to be an answer!! If anyone out there has figured anything out, please share....I can't continue living like this!

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Levothyroxine is for treatment of HYPO thyroidism not HYPER thyroidism.

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It is really a problem when you gain weight and suffer from hyperthyroidism. We tend to be health conscious and can't enjoy eating.

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I would like an endocrinologist to answer this question, please: Why does every single article on Hyperthyroidism say that a symptom is weight loss when so many people claim to have weight gain with this problem? I am talking prior to medication of course.

And is there a dietary course one can take?

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I've been dealing with the same situation. I'm 14 years old and I've always been tall and very skinny 2 months ago I was 5"11 and 120 lbs I looked like a model and I owned it but threw February and March I started to get lots of symptoms including: migraines, puking, hot flashes, not being able to sleep, and irregular weight gain. I was 120 lbs and it seemed as if over night I gained a lot of weight. It was not gradual it was all the sudden my weight hit a whopping 153 lbs. Over night, I felt like I became this monster who would just eat and eat now my apatite is so big and I look bigger to me and my family but my friends haven't noticed. I'm still skinny but not like I was I don't feel like myself. I was just diagnosed with hyperthyroidism when I went to my peditrian and she noticed that I couldn't sit still and I was shaking for no apparent reason and I had been like that for some time bit I didn't think much of it. This all happened about 1-2 weeks ago and just yesterday I was diagnosed with Graves Diese. I habe only been taking beta heart blockers and methamozoil (sorry for spelling) and they have kept my weight steady. I'm very curious to why I gained all this weight because with hyper thyroid I'm supposed to be losing weight. Please help me I want to get to the bottom of this. Also I'm a very active girl im always excercing I don't eat the healthiest but lately I have been eating much healthier and I just want to get back to my normal weight oh and I was jut diagnosed so I haven't been able to exercise for 2 weeks no so my heart rate slows down and becomes steady

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The hyper condition uses up your cortisol (glucocorticoid) too fast which would help your metabolism. I've been hyper for over 20years-African-American-may as well be living in a 3rd world country. So if they are trying to help let them cause i am still trying to get help.

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I am having the same problem. I was diagnosed with Inappropriate Sinus Tachycardia about 5 years ago. My resting HR was about 140. I went on beta blockers and went back off about a year after I was diagnosed. The problem has not been as bad so I asked to come off the med. I was gaining weight and could NOT lose it.

Fast forward to this year. I gave up a ton of food for Lent, reduced calories, at healthy but still allowed myself about 1,300-1,400 calories. Nothing worked. Finally I picked up a book about metabolism and it really blew me away. It said if you have problems losing weight no matter what you try, you could have an endocrine problem. I have an appointment in a few weeks but here is what I found researching this on my own:
Hyperthyroid, even though your heart rate is fast, can make you gain weight. If you think about it, your cortisol levels are high. Your body is stressed to the max, you are anxious and guess what? You gain weight with excess cortisol. I don't know why I did not think about this before.

By the way, I rented a book called The Complete Thyroid Book and it had something very interesting in it. I learned that thyrotoxicosis is a precursor to hyperthyroid and the symptoms often are misdiagnosed as being a cardiology issue. Anyway I thought that was interesting since that's what happened to me.

I hope that I can figure out how to lose weight because I have tried everything. It's not fair that we are responsible, healthy individuals trying to take care of our bodies and we cannot lose weight. I am like 30 pounds overweight and I cannot even lose 10. It's incredibly frustrating to be in my 30's and feel like I have let myself down.

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I was diagnosed with hyperthroidism about a year and a half ago, after I noticed that I had hand tremors and a rapid heart beat. I had also lost about 15 pounds. Went on methimazole for about a year but kept gaining more and more weight. Stopped taking meds about 5 months ago and have continued to put on more and more weight. Very discouraging.

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I was diagnosed with Graves disease in April, and have always been a bit overweight. I exercise regularly, and although i was always hungry, I have always watched what I eat. Since my diagnosis, I've been on a gradually reducing dose of carbimazole from 20mg down to 5mg per day. My latest blood tests results show my T4 levels have more than halved (from 24.5 to 11!!). My weight has jumped up from 170 to 198 lbs in six months, with no change in lifestyle or diet. I imagine this is due to my metabolism slowing down and body responding to the meds.
To try and combat the weight gain, I have introduced even more exercise into my daily routines (walking EVERYWHERE and more swimming each week), and I am watching my calories/diet like a hawk. I am now eating between a 400-600 calorie deficit every day (for the past 6 weeks), and my weight is not going down, but it now seems to be staying the same. It is extremely hard, and unfortunately there's not much else to be done at the moment, but I am going to monitor it until my next appointment, as the psychological effects are proving just as difficult to deal with as the physical ones!

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So you can have a thyroid storm while taking medicines? I am new to the severe hyperthyroidism & even though I am on medicine my heart feels like it is trying to go crazy & I can't tell if it's my lungs or heart (I'm an allergic asthmatic also) so I do get confused. Anyway because of my uptake looking like I was on thyroid medicine, (I was not) I am now on methimizole but a very low dose because of & the Beta blocker is pantoprozolol I think is how it's spelled. But I some days have a ton of energy but can't go because I feel like I'm going to have a heart attack but also now gaining weight! How frustrating! I go back to my endocrinologist on Tuesday to see what's next but I will bring up my heart lung whatever issue. I've just wondered if I could be in a storm on medicine. Thank's, Bobbie

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I have problems with weight gain as well. It is baffling even though I've read that it occurs as the result of one of two things:(1) heart failure, or (2) the TSI antibodies blocking the receptors on the thyroid gland instead of stimulating them, which can make the symptoms and signs look confusing. When heart failure occurs it tends to do so in older people who have Graves' disease.

This disease baffles me also because I have systemic lupus, and some of the symptoms overlap. I'm trying to learn what sets them off. I think the diseases often act up at the same time. I also believe that the Graves' disease tends to be active when I am stressed out, especially physically. So I think heavily exercise may bring it out. I do know that sunlight causes my kidneys to swell and bleed. That seems strange even to me, even though I know that it is true. Also, I have been told that my thyroid gland is burning out. The endo told me that she expects for me to just be hypothyroid at some point, but I wonder, because my cousin also had lupus and Graves' disease and her Graves' disease never burned out. She died in September after falling into another lupus induced coma.

I have to admit that I am angry and depressed about it all. I was a certified personal trainer. I'm 55. There isn't a lot of time left for me to learn a new trick. I threw everything into that basket.

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Has anyone had there reverse T3 levels checked?

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I know that this is an old comment, but I am hoping that you are still receiving notifications. I had my RAI the first week of April 2017 and have since gained 34lbs. I feel horrible and at such a loss. The only change in my eating habits has been that this last month I stopped drinking Pepsi. (Yes, I am a Pepsi-holic and seriously drank a lot everyday) Of course you'd think that if I cut out the crazy probably 1000 cal. per day in Pepsi that I would at least not GAIN weight. Soo not the case.
I'm hoping that you have some ideas or can tell me when/if this levels out. Thanks in advance.

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Hi,

I was diagnosed with Grave's Disease and Hyperthyroidism one year ago. This past year has not been easy, and we all through it. I am 26 years old, and my heart was beating fast so this was a concern. I saw my primary care doctor and she told me that I have hyperthyroidism. I was scheduled months later to see an endocrinologist. In the meantime I noticed my eyes were popping out (horrible for your self esteem). I was losing weight. I was 135 and dropped to 119. My endocrinologist put my on methimozole, a beta blocker, vitamin D, and selenium for my bulging eyes. From medication, I went from 119, to 150 and I was feeling like a slug. I decided to stop my medication cold turkey (which is not good) and I lost over 20 pounds, so YES your medication will make you gain weight. I did so much research about what other people did, and YOU CAN BE CURED. Doctors are just popping us with pills, but they are not getting down to the root cause of why we got this disease and how we can revert it. I am currently seeing a holistic nurse, who had the same thing as me and cured herself. Key word there "HAD". She studied western medicine, so she gave me some herbs and also does acupuncture. I did so much research that I learned all about herbs that will help this disease. And ways to eat that will help, because what we put in our bodies will help us significantly. Trust your instinct. I did, and I will be cured in a a year completely. Do as much research as you can. Best of luck everyone!

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Check your cortisol, also, go on a diet, exercise won't help much itself. Change regular milk to plant based milk also, all mayonaise and other dairy sauces to plant based sauces, it would make a huge difference if you don't want to go on a crash diet. And overall cut calories, use cronometer, write there everything how much and what you eat, sometimes people underestimate how much they eat.You need to eat 300-500 calories less than you burn to lose weight.https://cronometer.com/
Hope it helps.

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I too am in this predicament. Diagnosed with
Advanced hyperthyroidism, graves, heterogeneous
Goiter on the right side of the thyroid and
a 2.05 cm nodule on the lower left lobe, july 2016. And it has been extremely difficult for me. My endo told me once I got off Methimazole I’d start to
Lose weight. Best I can remember before I got on the
Methimazole I weighed 129 ish. I was on Methimazole for 1 year
And blew up to 166. I waited 4 months & went to all
Different doctors. Gastro, Endos, GYNs, GPs, Cardiologists
Anyone for a stomach that looked like I was 9 Months
Pregnant who could help. Finally One Doc told me go on
A fast. See if it starts your metabolism. Well I went on a
Major fast. 600 calories for 2&1/2 months and before that
850 but only for a little under a month. I started working
Out like crazy as well.. burning a Defacit of 800-1000
Calories 6 days a week. I’m down to 131 and so grateful
But I’m afraid of what’s to come. I tried to add more food
Back but started to see I was gaining 3-4 pounds so I
Went back to 600 and some days 450-500. I am
Positive this medicine stops your metabolism
Permanently. It’s been 7 months now since I am off it
And I can’t eat normal or not exercise or it will come back
And quick. I am a vegetarian & eat little to no carbs.
I only say all of this to say if you were desperate like
Me the only solution seems like starve yourself and work
Out for several hours a day. Any feedback from people
Who know this struggle would be helpful. The Doc said
Once I got the metabolism working again I could eat normal
But I am seeing now that is untrue. And I fear I will need
To be at 600 calories a day with insane work outs always now

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Hi everyone, I have been diagnosed with graves disease last Monday. I never had any symptoms I would never know if I didn't tell my OB/GYN that we want to start trying for a baby. I've been on 10mg methimazone twice a day and propranolol 3 times a day for few days now. I'm 158lb have been for few years now I used to have no problem losing the weight but if I did lose it I gained double. I'm really scared gaining more weight cuz I feel like I'm already big. I was thinking about radioactive iodine but im not sure if I gain or lose weight. I'm hoping someone has since answers.
Thanks

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I have been recently diagnosed with hyperthyroidism and have gained a total of 11 lbs in just 2 months. It's difficult as I get hungry all the time and can't seem to get satisfied when eating. I am getting depressed as my clothes don't fit me anymore. I hope somebody can give any advice that worked for them.

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You say you've been diagnosed with Graves disease AND Hyperthyroidism. You DO realize that Graves Disease is just one type of hyperthyroidism, not 2 separate diseases? I keep reading and keep coming across this more than once so thought I'd ask.

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Hi, just wondering what holistic approaches/herbs are you using? And where’s did you find your holistic nurse?

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Just wondering what herbs did you use and where did yo I find the holistic nurse?

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Hi. I just started on this website. I am experiencing the same issues. I was recently diagnosed with hyperthyroidism. TSH less than .01, T3 & T4 through the roof. I don't have the numbers in front of me - I also tested positive for the Graves antibodies. The whole thing actually started because my eyelid was drooping out of no where so they began testing me for everything under the sun. So while I'm happy they figured that out, I am on the methazimazole (sp?) and like everyone here I have been steadily gaining weight. I had gained weight over the winter and that was my fault - just sitting around eating junk and less exercise. But now that I'm truly watching calories, using myfitness pal to log everything, exercising, I just can't get it to budge. I lost 30 pounds the year before and was so happy and back to my pre-baby size (my boys are in highschool now) but now I've actually gained ALL of it back and I am right now where I started. I'm getting really nervous. Have you found anything that worked? My doctor yesterday just moved my meds from 30mg a day, up to 40mg a day because the T3 lowered very slightly over the first month on and she didn't feel it was a big enough drop out of the danger zone. She wanted to double it, but I asked her to give me one more month to see if it works at just 40mg. I'm scared of what this medicine is doing to me.

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my patient has normal T3 &T4 but TSH =8.49 while it ranges from 0,27 -4.2
what should we do to reduce TSH.

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Hi,
I dont know whether you guys still on this or not, but I still register here just to express my situation.
I was treated hyperthyroid about 2 years, now my number is stable, im still on carbimazol 10mg per day.
In my 2 years I gain 30lbs, it was frustrating.
I'm even more stressed with my body than my hyperthyroid.
The last time im on diet I lost 6lbs and cannot lose anyweight since then.
I read on internet that they said we can take other drug to reduce our set point on weight, any body have idea on that? please advice cos im really stressed out with my body.

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Hi,
I dont know whether you guys still on this or not, but I still register here just to express my situation.
I was treated hyperthyroid about 2 years, now my number is stable, im still on carbimazol 10mg per day.
In my 2 years I gain 30lbs, it was frustrating.
I'm even more stressed with my body than my hyperthyroid.
The last time im on diet I lost 6lbs and cannot lose anyweight since then.
I read on internet that they said we can take other drug to reduce our set point on weight, any body have idea on that? please advice cos im really stressed out with my body.

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So I was diagnosed with Graves’ disease end of feb. I have been taking 15mg of methimazole twice a day. I just received my blood work and I became hypo. So me endo prescribe me 100mcg of synthroid and he did not adjust my methimazole. Is that common? Should I be taking both?

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I have just read every comment on this forum and I am depressed, I was diagnosed with Hyperthyroid during a thyroid storm that cause an unknown brain aneurysm to rupture, lucky to be alive, was in a coma for ten days and in the hospital for a month. I left there on 20mg 2X a day of Methimazole, that was three and a half years ago, I am still on methimazole and now I have high blood pressure and take Atenilol and Lisinopril,I have gained 80 lbs even though I have become vegan a year ago. I crave sugar, I am also Methadone dependant (not because of elicit drug addiction). It hurts to exercise, my muscles hurt, I am exhausted all the time. I need to lose weight, thinking of just going off my Methimazole but then the guy earlier said it did not help him. Crazy, I hate this. Of everything being fat is the worse. Anyone out there want to chat please write back and I will keep checking. Love to all...Kim

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