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EndocrineWeb Community Advice

Hyperparathyroidism after parathyroidectomy

From: loriprice827 - 32 weeks 2 days ago

I have be dealing with high parathyroid levels after having previous surgery where two glands were removed. As of last Dr visit my vitamin D level is good, my calcium level is at ten but has risen to that level from previous visits and my kidneys are functioning fine except I have 3 kidney stones (got another one after surgery). My symptoms of parathyroidism subsided right after surgery but returned within 6 months post op. My surgeon sent me to an endocrine Dr who has ordered a parathyroid scan and a ultra scan which I have been reading are really a waste of your money if the scan is not done properly and the ultra scan rarely picks anything up. I did go through tons of test prior to my intial surgery with only one saying there maybe a problem. I just started crying once the Dr left the room and my husband didn't understand how we feel about not knowing what to do and how terrible you feel from all the symptoms. You do not generally just get a blood test for this but I have RA and they test me for all kinds of levels because of all the medicine I take. Has anyone come across this problem and what to do next? The endocrinologist did say that some of the tumor could have been missed and inside my thyroid gland or in my chest. What to do?

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1 Response

Is this good advice?

I can understand how this would be frustrating and scary. You went through surgery and are still having problems.

Nevertheless, you might try getting the scan anyway. Or possibly have your PTH and calcium retested. If you only had 2 parathyroid glands removed, maybe one or both of the other 2 are causing symptoms? I don't know but I think you're better off having the tests your endocrinologist recommends.

Hope you can get this resolved soon, and feel better!

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