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EndocrineWeb Community Advice

Hyperparathyroidism after parathyroidectomy

From: loriprice827 - 4 years 7 weeks ago

I have be dealing with high parathyroid levels after having previous surgery where two glands were removed. As of last Dr visit my vitamin D level is good, my calcium level is at ten but has risen to that level from previous visits and my kidneys are functioning fine except I have 3 kidney stones (got another one after surgery). My symptoms of parathyroidism subsided right after surgery but returned within 6 months post op. My surgeon sent me to an endocrine Dr who has ordered a parathyroid scan and a ultra scan which I have been reading are really a waste of your money if the scan is not done properly and the ultra scan rarely picks anything up. I did go through tons of test prior to my intial surgery with only one saying there maybe a problem. I just started crying once the Dr left the room and my husband didn't understand how we feel about not knowing what to do and how terrible you feel from all the symptoms. You do not generally just get a blood test for this but I have RA and they test me for all kinds of levels because of all the medicine I take. Has anyone come across this problem and what to do next? The endocrinologist did say that some of the tumor could have been missed and inside my thyroid gland or in my chest. What to do?

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4 Responses

Is this good advice?

I can understand how this would be frustrating and scary. You went through surgery and are still having problems.

Nevertheless, you might try getting the scan anyway. Or possibly have your PTH and calcium retested. If you only had 2 parathyroid glands removed, maybe one or both of the other 2 are causing symptoms? I don't know but I think you're better off having the tests your endocrinologist recommends.

Hope you can get this resolved soon, and feel better!

Is this good advice?

Sorry it has taken so long to reply. I finally had surgery again in Tampa Florida with the Norman Parathyroid Clinic and Tampa General. They actually have a part of the hospital just for Parathyroid surgery. Here in Louisiana no other Doctor would even consider doing surgery again. I found out by having the surgery in Tampa that the doctors here took out two normal glands. I was told the surgery was harder because of excessive scar tissue and that most likely the other gland near the nerve that is for your voice was dead. So they had to take a small part of the gland with the tumor and implant it back in my neck and that there was a high possibility I might need surgery again in the future. My advice to everyone who needs surgery for your Parathyroid or thyroid is to go to Norman Parathyroid Clinic in Tampa Florida. Go to the Professionals.

Is this good advice?

I had surg. in July for one adeoma. My PTH was 44 after surg.
In Sept. my F/U labs were 740 again at Quest Lab.

Had it retested at Labcorp - PTH was 57 ( normal)

Dr. requested I have it done again at the hospital lab. and PtH test was 137.
All tests were different - waiting 6 mo to retest again.

All other tests were normal before and after surg. No symptoms.

Is this good advice?

I had surgery 4 months ago, after surgery felt like a million bucks, now back to the same old thing, depressed, tired, don’t want to do anything. PTH 44 after surgery, now up to 76. I had 4-gland hyperplasia with 3 removed but from what I have read they usually take out 3-1/2, hope I can have surgery again so I still have hope for feeling good