Register Today!
Receive our eNewsletters. Signup
EndocrineWeb Community Advice

Hyperparathyriodism diognosis

From: kayjay57 - 8 years 22 weeks ago

I was recently diagnosed with hyperparathyroidism. 3 days ago, I didn't even know this condition existed. I am currently waiting for an appointment with a local Endocrinologist. I hope I don't have to wait very long to be seen and referred for surgery if that is what I need. I live in Northern California and have no clue if there are any surgeons in my area who do the MIRP using Dr Norman's method. Does anyone have any info on doctors in my area?

Thanks,
kayjay57

Do you find this discussion helpful?
1

48 Responses

Is this good advice?
0

WOW DeeDee...it sure sounds like you've been run through the mill with this! I'm so sorry to hear they found cancer...but at the same time, really glad they found it and were able to take care of it now rather than letting this thing go on any longer. I hope you're feeling better by now. I will continue to keep you in my prayers! Please keep me posted on your progress.

My thyroid was fine...and my calcuim level was borderline at 12 & 24 hours post-op...so I had to go back for another blood draw at 48 hours. By that time it was in the normal range so he just wants me to continue taking the oral supplements for now. I see the surgeon on Wednesday and I'm sure he'll send me for more labs at that point. I also see the Endcrinologist on Thursday this week. Hoping to have a little more info on where to go from here.

Saturday was my worst day...and I was worried that Sunday might be hard too...but I ended up feeling better. I actually went for a short walk to expend a little bit of energy...but I didn't end up getting very far before I was ready to sit down & rest. I'm back at work today so we'll see how it goes. They know that if I run out of steam before 5:00 I'm just gonna call it a day and go home. I don't think it's wise to run myself into the ground.

I have also been glad to have someone else to talk to about this stuff. Looking forward to hearing from you again...and praying that your recovery goes well.

Kathy

Is this good advice?
0

Hi DeeDee,
Just wondering how you're doing and what you found out at your post-op visit. I had mine yesterday and my pathology report was abnormal. The doc said everything they found was consistant with cancer...yet no malignancy was identified. He said this is highly unusual. I'm feeling very blessed right now.

I'm certainly praying for full and complete healing for you DeeDee! God is good and His plans for us are good too! Please stay in touch and let me know how you are doing.
Kathy

Is this good advice?
0

Hi Kathy !
You are right, and having faith is an absolute !!! It is somewhat confusing about your pathology report though. When you said that no malignancy was identified, does that mean with the parathyroid tumor that was removed from your neck, benign right? And being consistant with cancer, is that from what was determined in your bloodwork? It is kind of odd that your report said it was consistant with cancer, yet none found. My reports were not consistant with cancer, yet some was found. So if you have none, and I now have no more, I do believe we are both blessed !!!

Sorry for not getting back sooner. I actually was feeling so good last Tuesday, I kind of over did it a little. The sun was shinning, so I started washing windows, cleaned the stove, caught up on laundry, vacuumed, dusted, took the outside Christmas decorations down, made a big dinner, even baked cookies !!! All the while I felt like dancing, it was such great energy, but I may have used it up all at once. The following days were needed catching up on rest and minimal chores, but gradually now I feel like I'm balancing out. You had said you were going back to work, I doubt I could handle an outside job, I don't know how you do it. You must have been exhausted, for sure before the surgery huh?

My follow-up at the surgeons went well, with the exception that he said I should probably see the Endocrinologist again. Ugh!!! My one and only visit with him did not go so well. We are definately not on the same page, or should I say planet. I rescheduled my MD apt. for next week, they will do some more labs. I hope at that time they can determine that my remaining thyroid is functioning properly and that is all that I need, without sending me to the Endo.

Thanks once again for thinking of me! I'll be waiting to hear from you again too, you must be getting excited for the up-coming wedding, it is not so far away now :)
DeeDee

Is this good advice?
0

DeeDee

Please update us on your outcome! I flew to Tampa a short time ago and Dr. N completed my MIRP surgery. I would like to compare stories with you!

Is this good advice?
0

Hi DeeDee,
This is my first time on this site and I read all of your post and had some questions. I was diagnosed with hyperthyroidism in Oct 2008. Went to Endo doc and he did a biospy and said it was beign. Put me on meds and it seemed to subside. I took myself off of the meds and quit going to him about 6 months ago. Have had a few of the symptoms returned such a tiredness, headaches, shaky hands (terrible handwritting) but not heart palpitations as before! tg.. My questions are: How did you get dignosed for the parathyroid? My doctor said nothing about this disese. Also did you experience cramping in your feet and legs. I wake up most nights with feet cramps and cramps in my calfs. Could this be caused by my thyroid. I have tried to do research online but don't seem to find any answers there?? And last how do I go about finding a good surgeron and a another good Endo doc. I live in Beaumont, Texas I would assume that Houston which is only 1 1/2 hrs away would be my best bet?

I pray this finds you doing well since your surgery and look forward to hearing from you.

Take care,

Shelia in Texas

Is this good advice?
0

Hi Shelia,
Just wondering...have you ever been tested for Parathyroid issues...or just the Thyroid? There is a big difference between the two.

Is this good advice?
0

Firebird56

Hello and congratulations on your successful parathyroid surgery! You seem very excited as well you should be. It sounds like you have endured this disease for many years, and no doubt have suffered it's symptoms. What a relief for you, I would love to hear more of your story, and now how are you adjusting?

Just to clear up in case of confusion, my daughter actually posted on here first "Evidently hyperparathyroid symptoms are self induced..." (you were the only one that replied!) I had signed into this site, but she posted that first, out of frustration. From that point on I had returned here myself and connected to this thread and have found the benefit of corresponding with Kayjay57. Looking forward to hearing from you.

deedee

Is this good advice?
0

Hello Shelia!

Nice to see you here. The parathyroid tumor was diagnosed through the blood test initially, high calcium levels, then urine test. Since my MD's office stated they don't know much about hyperparathyroid, my family began to research it on-line. That is where we discovered a wealth of information from Dr. Norman. www.parathyroid.com) in case you have not been there. You will also find answers on what to ask when looking for a surgeon.

I am wondering why you took yourself off the meds if you were diagnosed with hyperthyroidism? Some symptoms do overlap, or can be either from thyroid or parathyroid. Fatique, weakness, hairloss, cramps, aches, memory loss, insomnia, abnormal menstral cycles...etc. I'm afraid I have no clue as to how to find a good Endo. They must be few and far between, people in my area ask the same.

Keep us posted, I see my friend Kayjay57 has also responded to your post. She and I as you know have found it a great help to have someone who is or has gone through similar.

deedee

Is this good advice?
0

Hello Kathy!

Just a quick note, I have not heard from you, wondered if my last post to you two weeks ago got lost in the shuffle :) Curious to hear from you, how are you?

Hope all is well.
deedee

Is this good advice?
0

I have never been tested for parathyroidism just the thyroid. What type of test do that do for the parathyroidism?

She

Is this good advice?
0

I have never been tested for parathyroidism just the thyroid. What type of test do that do for the parathyroidism?

She

Is this good advice?
0

This is for everyone who had been posting their messages on this thread for so many weeks now..

I am from India and I have primary hyperparathyroidism. I even got operated once for an adenoma but my levels of PTH did not come down to the normal levels. This was a year and half ago and then tests were done again to detect if there is any other gland which has also gone bad. All this to only know that I have yet another active adenoma - for which I need to get operated again. I have little trust left in the indian hospitals, specially because my case has gone bad once after a fully invasive surgery. I can't get myself to trust this system now. I read about Dr. James Norman in Florida and I wanna know if someone has had a minimally invasive surgery done by him? If yes, please connect with me. I will only then fly over to FL for this operation. Please help.

Is this good advice?
0

DeeDee,

I read your post and found that u have been to Tampa to get yourself operated for hyperparathyroidism by Dr. Norman. I want to connect with you to know more about it. I am from India and I have had a major complication in my last parathyroid surgery. After the fully invasive surgery- docs found that there is another adenoma in my neck - for which they would again be doing a fully invasive surgery. I am really dejected and now want to fly to FL to meet Dr. Normal. But first, want to be sure about his procedures and credibility. Please help.

Is this good advice?
0

Hello Imunderveil
Sorry to hear of your misfortune. I was not the person who went to Tampa, though I would have liked to. Perhaps you can connect to "Firebird56" who has posted on this site and has had a successful parathyroid surgery by Dr. Norman. I hope you can get the added info. you seek.
deedee

Is this good advice?
0

I just recently had my parathyroidectomy - actually 3 days ago and I am feeling like a NEW person. I had it done at the University of Iowa Hospitals in Iowa City, IA and am thrilled with the results! It took me a long time to find an Endocrinologist in the Quad Cities (where I live) who would send me there to the Endocrin Department. I love my new Endocrinologist there and the surgeon who performed the surgery! I am no long COLD, my energy is returning and I can watch a whole program on TV without falling asleep! Best of Luck to you!!

Is this good advice?
0

Hi NanaP,
I just recently found out I had high calcium and PTH. I am very interested in which surgeon you had in Iowa City, IA and if you had the mini surgery like they have in Tampa. I am in NE and going to FL would be a long trip. My son had an acoustic neuroma operated on in Iowa City and his outcome was great. Please advise as soon as you can resonably do so. Thanks so much.

Is this good advice?
0

I was just diagnosed with a hyperthyroid and I was wondering if any of you got a rash or rashes on your body?

Is this good advice?
0

Kathy...hello, are you there?
It has been a year since our surgeries, I have been wondering how you are doing one year later.
Would love to hear from you!
deedee

Don't Miss Out! Get the FREE EndocrineWeb eNewsletter!

Sign up to receive treatment and research updates, news, and helpful tips on managing your condition.
SUBSCRIBE
close X
SHOW MAIN MENU
SHOW SUB MENU