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EndocrineWeb Community Advice

Heart attack due to uncontrolled Hypothyroid- cautionary tale

From: melcollins12 - 2 years 49 weeks ago

I had a total thyroidectomy due to Hashimoto and a nodule riddled and diseased thyroid and lost 2 of my 4 parathyroids in 2002. My thyroid was hamburger and fell apart in the surgeons hand and he took 5+ hours to map and find 2 remaining parathyroids and implanted them back in my neck (bless his heart!). I have had hypothyroidism since that surgery. Tissue that must have clung to the 2 implanted parathyroids allowed a freak thing to occur- I was diagnosed with thyroid cancer in 2014 and my thyroid had grown back- just not in the normal place and it never produced any hormones. I had that removed the same year and they got all of the thyroid tissue this time and my parathyroids are still there. The hypo levels is my fault because I wasn't taking my synthroid like I should because I didn't feet any better with it and eventually got used to the symptoms from being hypo- generics don't work and the meds are expensive and a pain to take (my excuses).
Long story short, at the age of 42, I had a massive heart attack. After all was done and said, I was told it was due to my thyroid level and nothing else. My TSH was in the 90's but my cholesterol level was 644. My LDL alone is 494. Luckily my heart is unaffected and still strong or I would be dead now (in fact, all of the tests in ER showed no heart attack- it was only the blood work that they took initially vs 4 hours later that told the story). However, the angiogram showed my veins are very obstructed so now I have a dozen or more pills I have to pay for and take. I had NO idea how much danger there is from being hypo. You hear it, but it doesn't strike you as possible until it's too late. My last stay in the hospital due to chest pain, the doctor told me that I will kill myself soon if I don't start taking ALL the meds they subscribed. He also said that I have issues with some other organs now. He'd never seen labs as bad as mine and he has ICU patients that have better labs than I had and he honestly didn't understand how I could be awake and alert, let alone alive.

I hope those that are not taking meds because of the costs or inconvenience will take this to heart and avoid the pain and anguish that I and my family are going through. Best of luck to all and apologies for the book size post!

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