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EndocrineWeb Community Advice

Cold Intolerance

From: JoLynnPorter - 1 year 18 weeks ago

I have Hashimoto's Thyroiditis and have been taking a thyroid RX supplement for many
years. Recently, within the past two months, I began having an intolerance to cold air.
I must keep the thermostat 74 or above and other family members prefer 73 or below.
Also, since early April, after contact "bite" by an ordinary house spider, a case of
cellulitis developed in my left foot, spread up my left leg. In spite of taking an RX,
doxycycline, prescribed for reaction to insect bites, the cellulitis spread and now I
have a bad case of Lymphedema in both legs, including both thighs.

Testing of the abdomen and pelvic and both legs (ultrasound) have been completed
to narrow down the source of the Lymphedema. I am scheduled for physical therapy
to remove the fluids of Lymphedema in late August (long wait times, currently). I
have researched and learned that unless the source of the Lymphedema is found
and treated that neither PT nor use of diuretics will help --only temporary solution
to this problem.

Due to my intolerance of cold, I recently asked my PCP to check my TSH with the
usual blood test. The level is 2.03 and although I received a note of the TSH results
via mail, my PCP stated this figure is within the "normal" range, quoting a normal
level to be no higher than 4.5. In 2007, I was re-evaluated by an Endocrinologist
who actually classified my thyroid condition as Hashimoto's Thyroiditis. He slightly
changed my RX of levothyroxine from 0.1 to 0.112 and this helped me maintain
a normal TSH level until two months ago. I have an appointment to see this same
Endo. MD in September, earliest available appt.

My PCP did order a new 90 day supply of my RX of levothyroxine in case the current
medication could be a "spoiled" bottle of medication, due to poor temperature storage
conditions. There is a current date on the old RX bottle; however, past records indicate
I needed a replacement bottle in past years, due to my TSH test revealing a low level
of TSH.

I know the range of TSH can be lower than 2 and higher than 12 ? Does anyone know
the correct level of TSH, or is this an individual level, depending on weight, age, etc. ?
I remember my 2007 determined level was above 4.5 and probably no higher than 8.5
for normal thyroid function, when taking a thyroid supplement. I cannot tolerate the
drug, Synthroid due to strong side effects. I use only one brand of levothyroxine and
know that levothyroxine does not work as a generic of Synthroid in my system, even
though I had no problems gaining weight while taking Synthroid. However, my hair
fell out, my eyebrows disappeared and I was jittery, sleepless and hyper. Any thyroid
supplement can cause hypoglycemia (low blood sugar) and I must constantly watch
my diet due to this side effect.

I also suffer with bouts of Congestive Heart Failure (hypotrophic cardiomyopathy)
due to my heart beating too fast (rare) and there is no special kind of pacemaker for
this condition at the present time. This is controlled by both a calcium blocker RX
for High Blood Pressure and another RX which works to prevent "hardening of one's
arteries". Also, a diuretic RX and potassium RX have been effective in controlling
edema, until April, 2016. Currently, the results from taking a diuretic are minimal.

Has anyone else experienced intolerance to cold, nausea at times, thinning eyebrows
and some mild loss of scalp hair (female), swelling of legs or other body parts ? Can
anyone share a diagnosis with me to help direct me to correct testing, as both my
PCP and Cardiologist are puzzled, esp. when the ultrasound tests revealed -0- or
insignificant findings. ? I realize I could be experiencing the effects of more than
one body disorder.

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