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EndocrineWeb Community Advice

Diagnosed but cant get help

From: KrazyFatigue925 - 4 years 22 weeks ago

Hello everyone! I have literally been tired for years. No matter how much sleep I get I am still tired. I was so sick of hearing everyone say its in your head. You need to eat right, you need to exercise, you need to do this or that. I know plenty of ppl who dont do those things and can still get out of bed. Finally id had enough, knowing my dad has thyroid issues I went to the doctor and told her I want every test I can get. TSH was fine, T3 fine, T4 fine. But my Thyroid tpo antibodies which I guess are supposed to be <36 were in the 3,000's. I was sent to an endo who diagnosed me with Hashimoto Thyroiditis, did a few more vitamin tests and stuff which all came back fine then sent me on my way because the TSH was fine. I have a 6 month old my first baby and I am missing out on his life because all I feel like doing is sleeping. Why will the endo not treat Hashimoto? Is there treatment? I have every symptom. Most of them I can deal with but being tired all the time makes me want to end it all. I just had a sleep study test done. No sleep apnea or anything. I need answers!!! Anyone have any advice please?

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2 Responses

Is this good advice?

Hello! I'm brand new to this forum but I had to respond to your post. I was diagnosed almost three weeks ago and my TSH and T3&4 levels are in the normal range also. I've been going to an alternative medicine nutritionist Dr. and doing a lot of research about getting to the root of this and doing what I can to heal myself. I am by no means a healthcare physician and this is just my opinion based on what I've read and what this alternative medicine Dr has told me, but I truely believe that your modern medical doctor isn't going to treat you until your TSH becomes out of range. Because what he would do is supplement you with those TSH hormones. That's what they do. So he (and almost every other modern medical Endo) is waiting until there is enough damage done to your thyroid to do anything about it. Again I'm brand new to this and I may have my facts mixed up so I would love to hear feedback if I'm incorrect.
But I am pretty darn certain that we can control this ourselves and even heal ourselves with nutrition! We have the ability to have complete control. The thing is we have certain things that are triggering our antibodies to attack our thyroid. We have to find those triggers and eliminate them. It will be hard at first. But it is so worth it to have our lives back!!
I'm exhausted too. I don't want to do anything. I don't want to work. I used to be so energetic. I'm in a band. I have a small farm. And I own my own business. And over the corse of the last few years my quality of life has deteriorated along with my energy, drive and libeto. Ive had to get past the suicidal thoughts. I had such horrible pelvic pain and my menstrul pain was level 8. I've been to doctor after doctor. I've had 6 ultrasounds and a cat scan. I was getting nowhere with the doctors so I started doing my own research. I thought I had endometriosis and found ways to reduce symptoms through diet. So I cut out gluten, dairy and soy. After a while my menstrul pain was completely gone!!
Then the diagnosis of Hashimoto's. I was so excited! I finally had a direction to go in! There are a lot of books on Hashimoto's diets. Here are a few I can recommend:
Hashimoto's Thyroiditis: Lifestyle Interventions for Finding and Treating the Root Cause.
This was the first book I read and it's a great one.

The Hashimoto's 4-Week Plan: A Holistic Guide to Treating Hypothyroidism

I hope this has helped encourage you! We really do have more control than we give ourselves credit.

Is this good advice?

I agree with the previous post. The answer is through nutrition. I spent a lot of time researching the reason my son was so fatigued. I believe the trigger for him was many years ago with several courses of antibiotics. Because all ones gut biome is destroyed by antibiotics unless one uses probiotics an abnormal gut biome then develops. Eventually many people develop a leaky gut. We found that by going on a 'No-grain' diet, and also not eating processed foods which are sources of hidden sugar that he has started to get his energy back. We also take probiotics to develop a good gut flora. As I joined him on the diet I noted at the same time that the goitre on the front of my neck is diminishing as well. The two books which helped me most were 'Brainmaker' by Dr David Perlmutter and the 'No grain diet' by Dr Mercola. Apparently a large % of our immune system is in our gut and if that's not right our immune system can start attacking our bodies. Hope this helps.