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EndocrineWeb Community Advice

Hashimoto's and Stuck

From: Lauren Is Silly - 3 years 23 weeks ago

I'm new here so I guess I'll just start this like an AA meeting:
Hi, my name is Lauren, I'm 18 and I have Hashimoto's Thyroiditis, Hypothyroidism, and Celiac disease.
I was diagnosed with hypothyroidism about two almost three years ago. I was showing all the classic symptoms like extreme fatigue, hair loss, brain fog, dry skin, and a load of random allergies. When I first got my blood tested my TSH was around 20, ever since then it's stuck at about a 6 or 5 and is all over the place. I am about 110lbs and 5'6" and taking 75mcg of levothyroxine. I've tried upping my dose but when I do I get chest pain and arrhythmia and sweat like crazy. I have also tried multiple brands and types of levothyroxine at different amounts and nothing has helped. I'm on a strict gluten free diet and eat very healthily with lots of fruits and vegetables. I'm just really stuck and don't know what to do, I missed my senior prom and graduation because of this and need something to change. So, if you have any ideas at all even if they seem obvious, I could really use anything. I should note that thyroid disease runs in my dads family and so does thyroid cancer, I haven't been genetically tested yet but will soon.
Thank you so much for ANY and ALL insight!
xo ~ Lauren

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3 Responses

Is this good advice?

Hey there, my name is Jale and I am also 18. I have hypothyroidism myself and have certainly struggled to complete my academic year. I get extreme brain fogs, depression, triedness and aches which can on occassions leave me practically paralysed for a certain amount of hours so I know how you feel. I have recently been trying to work out how i can get better myself and been doing some serious research into it all.
I have just started an online community myself
Have a little look and maybe message me if you would like to talk. I know just how isolating this can be and would love to help.
best wishes.

Is this good advice?

Hi Ladies!

I was diagnosed with Hashimoto's Disease at the age of 10 and am now 29. I've been taking 125mg pretty much from the start and when I stay on top of my medication, I'm able to function pretty normally. Over the course of 20 years with the disease I've learned quite a bit, but know that my journey will last a lifetime.

I wanna stress 3 main things that have made a difference in my journey so far and hope that they can help you.

First, health. I've learned that even with medication, I have to be a health nut. Excessive gluten will make me VERY sick. I keep a list of iodine rich foods on my refrigerator door. Fortified salt, salmon, tuna, eggs, milk, scallops, cod, yogurt, shrimp, baked potato with peel. Also, make sure to stick to a structured daily workout. Remember, hashimotos is an auto immune disorder and people with one autoimmune disorder are more likely to have another autoimmune disorder than someone who doesnt. That mean's keeping your body at peak condition is key to feeling good all of the time.

Second, find the right endocrinologist. I mean, face it, we're going to be dealing with this for our entire lives, we might as well find a doctor who we can be 100% honest with, feel comfortable with and trust. I know that going to the doctor sucks and getting levels tested isnt exactly a party. I try to imagine my doctor as my only FRIEND that 100% knows what im going through with this disease.

Lastly, keep a journal. This is something that I often have a hard time doing myself, particularly when im not on my meds, because i competely forget. Write down the date and time of particular occurrences ie, really sore, joint pain, irritable, groggy, brain fog, pissed off. Show your doctor the journal, seeing a timeline written out really helps your doctors perspective and might even help you come up with ideas that might help you too!

I really wish you the best of luck.

Is this good advice?

Hi i have had hypothyroidism for nearly a year now and a couple of days
ago i was diagnosed with hashimotos and i feel really tired,depressed and very tearful gor no reason i am also struggling to loose weight and i am so cofussed as my doc said try gluten free and failing that diary free aswell the doctors never give enough info and im am just struggling with what i should and shouldnt eat it feels like it is every thing to me i also heard things like no broccoli and colliflour no corn and no soya im just so overwelmed with all of this and just need some advice plss

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