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EndocrineWeb Community Advice

Is the odor emanating from my nose due to thyroid ablation?

From: kaybeary - 5 years 32 weeks ago


I am posing this question to this community because I don't know where else to turn. I've tried to get answers from my doctors but they aren't taking me very seriously.

I found out I had Graves disease about 10 years ago and I had thyroid ablation to kill the right side of my thyroid. From this time it has been a struggle to regulate my thyroid with the correct dosage of medication, however, my doctor and I have settled on synthroid (alternating between 137 and 125 each week). Outside of this, I haven't had too many issues with my thyroid (or the ablation procedure).

About a year ago, I started to notice that there was an odor coming from my nose. It smelled really bad, like refried beans left out for a few days, or raw sewage. And I notice it more when I turn my head to the left or bend my head down. At first I thought it was my breath, since I had just had my braces removed and was using a retainer. So I became even more diligent with my dental hygiene. But it didn't help. I asked my dentist about it and she said that it could be dry mouth caused by the medication (which mind you, is something I never experienced before). I started rinsing with biotene, increasing my water intake, and sucking on lozenges (all day everyday) but nothing helped.

Someone suggested that it could be a sinus infection, so I made an appointment with the ENT and he showed me my nasal passage which seemed pretty clear. He did give me an antibiotic to clear up a small sinus infection, but that didn't help the odor go away. My last alternative was to go to a gastroenterologist to get a diagnosis but he didn't find any connection.

So since I still live with this odor everyday that brings me here to this forum. Hoping that someone has had a similar situation or knows of someone else with this problem.

Thanks for listening,
Kay Beary

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