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EndocrineWeb Community Advice

Thyroid Surgery..

From: twoscorpiobabies - 9 years 9 weeks ago

Hi all....

I am new to this site, and pretty new to thyroid disorders in general..

Brief on me - then my question..

I am 28 White Female.. Have Fibromyalgia, IBS and I was diagnosed with HYPERthyroid a little over a year ago. I was pout on Propranolol and Methimazole... had all the tests done (uptake, blood work, then a fine needle biopsy - had a cold spot.. oh and a goiter) turned out, that I was ok.... I gained weight - was hungry ALL the time, but was ok :o)

Now at 1 year later at my check up (March)- my doc did blood, and I was Hyper again... still high even on my meds. Next I had just another ultrasound (being it was a year since the last...) and this time it said "Increase in size of the solid and cystic nodule measuring 2.6 x 1.6 x 1.9..." and "shows signs of Microcalcification...." and "biopsy recommended" so - in short basically it said both sides had growths, and both had grown... I was waking up at night gagging, but not too bad, some symptoms returned from my overactive thyroid as well... hair loss, anxiety and sleep disturbances... mind you still on the meds.

So - On the 17th of May 2012- I had my whole thyroid removed... I was asked if I wanted to do the biopsy again, or have it removed, or do the radioactive iodine... I chose the cut it out and end the hassle option.... maybe in haste, but still chosen, and already preformed..

So - the questions:

Will my removed thyroid tissues be tested for cancer even though it's no longer in my body at all? Since I didn't have the biopsy done, just had it removed, now I'm worried their might be a cancer lingering about and nothing to test to catch it early....

Does everyone have to take Calcium after surgery? I was told I have to, but it clearly says not to take the calcium anytime close to the same time as my new thyroid replacement med... but I am supposed to take it 3 times a day....

Why did I have an x-ray done on my chest prior to my surgery?

And, after I go to my follow up with my surgeon... who do I see... well for the rest of my life LOL for my meds after that? Primary care, my thyroid doc that found it all, the surgeon...?

Finally - now that I'm HYPO (under active), any advice for healthy living/eating? Like your problems having a 180 on your condition, and best ways to deal with them, like now instead of awake all night, I'm sleepy all the time..... any one else - any advice?

Thanks all for looking, I have a crumby insurance - so I worry I am not getting the best information there is from my doctors.... I trust them- but I feel rushed every time I'm in their offices.


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2 Responses

Is this good advice?

I can answer most of your questions. I just went through my second thyroid surgery. The first time they removed the left lobe and the second the right lobe. Both because of cancer. Here are the answers that I can give you:

1)Yes your tissues will be sent out for a biopsy. There are 4 types of thyroid cancer and just because the FNA biopsy says it is one cancer it can turn out to be another. For example my FNA said that it was Follicular carcinoma, but the biopsy of the tissue of removal confirmed that it was Papillary carcinoma.

2)I did not have to take calcium after my first surgery. But because during the second surgery they removed a parathyroid gland, I am on calcium until they are sure my levels are regulated.

3)The chest x-ray was for anesthesia clearance.

4)My surgeon prescribes my meds, but it is entirely up to you on who you want to see and who you want to prescribe your medications.

5)As far as being hypo, just take it one day at a time. Don't over do your self, set limits until all your meds are regulated.

Last let me give you some advice. You are your best advocate for your health. If something doesn't sound right, feel right, ask questions..demand answers and if that doctor can't give them to you, find one that will. The doctors are working for us, not vice versa. It is kind of like we are the boss, research everything and anything about hypothyroidism, know your body , your health. I wish you the best of luck!

Is this good advice?

Thank you so much for your reply, I have been going through so much, and I am so sorry to hear about your cancer. I pray for you to do well, and that the surgery and subsequent treatments will remove all signs of cancer.

I needed someone to talk to about this, my husband is out of town, for a few months, and I am here all alone. Thank you again, your reply has given me a moment of calmness, even if it's only for the night.

Thanks so much dear, Thank you!