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EndocrineWeb Community Advice

So many thyroid issues - Hashimotos AND Graves - Any insight?

From: Hatingmythyroid - 4 years 1 week ago

Hello everyone,
I didn't know where else to turn for advice. I'm SO scared and out of my element.
About 4 years ago I was diagnosed with a myriad of things (PCOS, insulin resistance, fatty liver, Hashimotos thyroid disease). I started seeing an amazing endocrinologist who educated me about my body, and my diet. Through treatment I have lost over 100 pounds and reversed EVERYTHING except for the thyroid disease.
I had a baby a year and a half ago and that's when my thyroid decided to switch gears.
I had been on unithroid (levothyroxine) for the past 4 years with no problems. As things fluctuated, my medication was adjusted, and my body adjusted.
Well, in the past 6 months, my hormones have fluctuated SO much that now (in addition to having hashimoto's antibodies) I ALSO have FULL BLOWN Graves' disease.
The tried to lessen my medication and, each time they do, my levels actually get WORSE. I am so upset. They decreased my meds and I gained 10 pounds (of what appears to be muscle so that's not terrible) BUT my levels were so bad last week despite all of this that they took me off of ALL thyroid meds and also started me on a beta blocker.
My doctor says that, while it is rare, it IS possible to have BOTH Graves and Hashimotos at the same time - basically my body is releasing BOTH of the antibodies and the Graves antibodies are winning.

I keep a VERY healthy diet (very low carb, high protein, fruit for desserts, dark chocolate, etc) except for over the weekends when I treat myself.

I am going to revisit my doctor in 3 weeks after more blood tests to see whether I should be on antithyroid meds OR I should go for radioactive iodine treatment.

So, now that I have you up to speed, here's my dilemma.

I am PETRIFIED of gaining weight. I understand that through this treatment I might gain a couple of pounds - maybe even FIVE - and that sucks enough - BUT i'm afraid of just ballooning up and putting over 20 pounds back on - GOD forbid the full 100 back on!

For anyone out there who is a professional OR has had experience with this - can anyone shed some light?
If I maintain my active lifestyle (cardio, yoga, etc) and keep eating as carefully as I do (low carb, high protein, watching calories, and just treating myself over the weekend) then do I have anything to worry about?

Will this just get resolved WITHOUT me blowing up like a balloon and spiraling since I have such a healthy lifestyle?

ANY insight would be appreciated - and please be kind. I'm SO out of my element and I have shed so many tears over this. I understand that the NUMBER ONE concern is my heart and general health but, for anyone out there who has ever been unhappy with themselves will understand, I FINALLY love my body and i'm scared to lose that.

Thank you for reading and listening <3

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2 Responses

Is this good advice?

Hi Hatingmythyroid
Wow, that's so great that you lost so much weight! Don't can only tip you over into an eating disorder or something like that. It sounds like you're really taking care of yourself, so I doubt you'll balloon up (I'm not a doctor). The thyroid can make you gain weight, but I don't think that much.

I've read a lot and it seems that medicine just says take Synthroid and possibly T3. I have pain and fatigue which haven't been fixed by meds. Taking Liothyronine (T3) actually made it worse.

Some people (alternative drs) say NO GLUTEN. I can't say how real that is. It seems like everyone's saying that these days. But maybe for good reason. Apparently it's supposed to cause intestinal permeability so tiny whatevers can go through the walls into your bloodstream and trigger your immune system.

I also just (finally) found an article that says to treat the autoimmune dysfunction, not the thyroid dysfunction. It seems so logical to me, but science doesn't officially know what to do for it.

I'm reading an interesting book about autoimmune disease.
It covers a range of common conditions.

My sister also found the following articles about alternative ("complementary") medicine. Maybe you should see a holistic doctor?

When Experts Disagree: The Art of Medical Decision Making

Foundation for Alternative and Integrative Medicine's where you can look up actual studies of complementary medicines.

Curcumin and Autoimmune Disease

Is this good advice?

You could also try another version of meds. Alot of people swear by Armour.

My doctor doesn't like to use it because it's based on pig thyroid and he's concerned about variation and anything an animal could be carrying. But he is very conservative.