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EndocrineWeb Community Advice

Hyperthyroid and Weight Gain

From: RiahGrace - 7 years 39 weeks ago

I am 23 years old and have been battling with hyperthyroidism for almost a year. I was diagnosed with Graves Disease after a lot of tests. I also have a noticeable goiter in my neck. I have gained over 50 pounds in the past year to year in a half. I have been on methomozole (I think that is how you spell it) and they have changed my dosage three times. Most days, I feel as if I dont even know who I am anymore. I have been trying to loose weight, I walked EVERY DAY during the summer and still gained weight. People and doctors look at me as if I am some sort of pig because you are suppose to loose weight when you have a hyper active thyroid and I gained weight. I feel so lost and so alone. My life is generally wonderful. I have a wonderful son and boyfriend, I am doing ok in my college classes and should graduate soon, but my weight is constantly on my mind. Someone came into my place of work (a bank) and told me I get bigger everytime he sees me. In his defense he thought I was pregnant but either way I had to excuse myself so I could go cry in the bathroom. I do not know what to do? I am thinking about having my thyroid removed because this roller coaster of ups and downs, weight gain, and changing medications have just done a toll on my emotions and I dont know how much more I can take. If I just take it out I feel as if my problems will go away but I know it cannot be that "simple". Any suggestions?

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39 Responses

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Hello. I live in USA and have been having symptoms of hyper & hypo and I have noticeable inflammation on neck that has a bruise on skin and lymphnodes sticking out there. Inside of my neck is a burning, itchy feeling and Ive had hair loss, weight gain, funny feeling in neck, soft nails, tired feeling, hip pain sometimes shoulder pain from neck etc. was complaining to several doctors that tested my blood but it kept coming back normal. Then on the last doctor I went to it showed I was hyper with 0.334 and I was just given 5mg 3x day 8 hours apart. But one place I went to previously didn't even test me but said I needed counseling and gave me a card. It is just a shame how hard it is to get treatment. I also read online with all my research that you can have hypo & hyper at the same time and have inflammation, it is called thyroiditis. So if you feel you have both, you might. Don't rely on blood tests & what the doctors say all the time. Feel your body & symptoms and demand care.

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Blood tests for thyroid are really important

They tell a story

If the blood tests don't match up to either hypothyroid or hyperthyroidism

There could be something else like a tumor

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Ladytee

You may also want to check for

Cushing's disease

You may have some of the symptoms for it

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Hi, no u misunderstood me. I know they are needed, but I meant sometimes they show incorrectly such as if u take it the wrong time. I read u should take it in morning or night or it will show normal when you are NOT normal and u will not get the correct treatment. Like they did me. (I had to take test 4 times) Also you can go from hyper to hypo very quickly and maybe hypo and don't know. As far as me I'm hyper and have been taking the meds but feel I have gotten hypo I have been constipated for 4 days eating fiber, taking tablets, etc. still cant use & has gained weight. So I made apt to endo to see what they say & have stopped my meds in the meanwhile. Everyone is different. Thanks.

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Hi Guys,
I'm wondering if anyone lost the weight or found they could lose weight after a total thyroidectomy? I'm 34, near anyone's best guess have had graves since around 19-20. Had around 3 cycles where I was incredibly unwell across my 20's but due to some sh*t dr's nobody could figure out what was wrong with me. I ALWAYS gained weight when it was bad. It started again when I was 28 & pregnant, finally exploded & is not likely to burn out again. My T4 levels are really high, just under 70 despite being on 50mg of carbimazole & 60mg of propranolol daily. My T3 is uncharacteristically just as high & they're both rising. My new amazing endo wants a total thyroidectomy done stat, my neck is swelling & Graves has been out of control for years. The weight gain is the worst & i gained before medication when the graves was raging but with medication I have STRUGGLED to loose weight. I was hiking daily & doing a continuous loop up a massive hill every afternoon reaching distances of 15-24km 4-7 days a week plus eating sweet FA & didn't loose a thing! Then ppl tell me I need to diet & exercise

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I hear ppl gain weight after thyroidectomy but wonder if thats people with Graves who are used to eating a heap of crap food & still losing weight. I want to know what happened with people like is after RIA or thyroidectomy. Once you normalised did the weight drop off? Did you have to work hard but at least it came off unlike before? Or did it keep coming?!

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I am really glad I read this discussion, I thought I was going insane. For the last 3 years I have had a list of symptoms including blurry vision, sandy feeling in my eyes, general braig fog and malaise, loss of energy, sleeping too much and irritability, hypertension and 15kg weight gain.
I am in Australia and I went through 6 different doctors to get SOME KIND OF ACTION for these symptoms. I was told by one doctor it is mental symptoms and I need a psychologist. Another told me I need to wake up at sunrise and watch the sunset. Another doctor told me I need to start meditating. None of them wanted to hear me out about how I felt. I feared I had the worst autoimmune deficiency there is so I went through a barrage of sexual transmitted disease tests and came up with nothing.
I finally found an Australian doctor who listened and started doing blood tests on my thyroid. We started tests in December 2017 and now it is September 2018 I finally have results.
Graves’ disease, toxic multi-nodule goiter and cancer cells present. I have been referred to have total thyroidectomy because it is too risky to leave in. So far I have not been given any medication and I feel like crap, like I would rather not wake up then go through another day feeling like this.

I am so disappointed with the New influx of overseas GP’S here in Australia who are more focused on prescribing meditation and sunrise therapy when there are legitimate concerns that need addressing. Going to a doctor is not fun for me and I feel like there was months wasted going to see judgemental doctors who hold their prescription pad for ransom.
I have learnt more from this forum than any doctor has told me in 10 months so thank you for letting me know I am not alone x

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Hey,

Where abouts in Australia are you located? I was sick for over 10 years & it was actually a free Indian GP who finally ran the test my other dr kept blaming stress.

I’m in Brisbane & my Graves was handled very VERY poorly even after diagnoses. I also was eventually diagnosed with lupus & overlapping connective tissue syndromes right before my thyroidecromy. All I can say is, get new dr’s. For years even with the graves I was still too sick & nobody did anything. I had a total thyroidectomy nearly 6 months ago & I know feel so much better it’s indescrible. If your dr keeps blaming stress or depression & you’re not then go see someone else. I wish I’d done it years earlier. I was really worried about the thyroidectomy but it went well, I have hardly any scar.

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Hey kittin,
I’m glad to hear you are feeling better now after everything. At this time I am in Northern NSW. The initial doctor I had found was really good but retired shortly after I met him. The doctors here around Lismore are shocking. One of them is the one who told me I need a psychologist, so I went to see if he was right and no kidding the psychologist told me to ‘start digging holes in the backyard and once you’ve dug them, fill them in and repeat’. Unbelievable.
I am having to go to tweed every time for an appointment now, because they seem like the only GP’s that know what they are doing.
I saw the surgeon yesterday and it looks like I will have the thyroid removed in a months time, I cannot wait. I have hopes hearing you feel better after your removal, I really do x

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