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I have a large goiter and nodules throughout my thyroid, the FNA came back inconclusive, and the ultrasound was suspicious. My doctor advised me to have it removed. After meeting with the surgeon, I felt confident that it was the right thing to do but now I'm having second thoughts. I am concerned about the long term effects of having to take replacement medicine, any advice?

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Hi, I had my thyroid removed in January 2005. My FNA was inconclusive, as well. I opted to have it removed and have had no side effects from the replacement medicine. I take Synthroid (brand name) and have never had a problem with it. Just make sure and take it first thing in the morning an hour before you eat. It may take a little while to get the dosage right, but I have had no problems. Plus, the pill is tiny. Good luck and keep your scar out of the sun until it heals.

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Hey! thanks for the last line to keep my scar out of sun until it heals!

I had the surgery six weeks ago and it is healing nicely, but it is summer and I would normally be in the sun, so I will watch that. I would not have thought about that but it makes sense!

As for the hormone replacement, I also was hesitant to be wedded to the big drug companies and a medication for the rest of my life, but when I considered the alternatives of possible cancer (which it did turn out to be!) I decided it was worth it. It is taking some adjusting and getting used to but I can see that eventually I WILL balance out again!

Actually, I can now see that alot of the anxiety, weight gain, and exhaustion I was experiencing before the removal was actually the thyroid not working properly. My blood tests kept coming back borderline so GP kept saying it was just menopause - NOT! I am finally sleeping again and not "crazy" all the time - or at least as much ;-)

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Thank you very much, I had my surgery a little over 2 weeks ago and am feeling much better!

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Request another FNA if possible. I have papillary thyroid cancer and have had a total thyroidectomy. If surgery is the option, then find a surgeon that is skilled. I believe my surgeon out of inexperience or due to my cancer spreading had removed some of my parathyroids which has caused me to deal with low calcium levels (tingling on face, mouth, hands, slightly swollen tongue.) I have since changed hospitals altogether to find the best skilled surgeon for a pending surgery (cancer recurred). I have also told my current doc. that I will not have surgery unless I am assured a tumor is visible and an FNA is positive. So far I have opted for radiation, I-131, instead of a 2nd surgery. Sidebar: I no longer wear turtlenecks because anything that rubs on my neck to my chin feels weird since some nerves were slightly damaged where the surgeon originally cut. My scar looks like a hockey stick. The surgeon took out cancer that had traveled to lymph nodes under the jaw.

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I'm male and 45 yrs old. I have an enlarged thyroid that is starting to impact my vocal cords and airways. The past two years i have experienced weight gain, fatigue and loss of muscle mass. I get my thyroid removed in August but am wondering what life is like after surgery. Will i gain or lose weight? Get energy back? Only my T4 level was abnormal so I'm not sure how much I can blame my thyroid for the before mentioned issues. Any feedback would be appreciated.

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I'd like to know the same thing. What are the effects of removing your thyroid? My daughter has Hashimoto's and they don't even try to see if she's at the best dosage for her height and weight. So I worry about having to rely on pills if they take mine out.

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My name is Amanda I have hyperthyroidism, Graves disease a goiter and high blood pressure and complete insomniac. In September I'm supposed to have my thyriod and goiter removed. Up until late this point for 5 years I've have so much energy and I just keep going. I started walking everyday because I'm unable to work and my anxiety and hyperactivity had been so stressful. My doctor said u won't be the same person anymore and won't be active and will suffer depression. I just want to ask what life is like and ur body is like after surgery and can't I just cover my neck if I go outside in a runner.

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My name is Amanda I have hyperthyroidism, Graves disease a goiter and high blood pressure and complete insomniac. In September I'm supposed to have my thyriod and goiter removed. Up until late this point for 5 years I've have so much energy and I just keep going. I started walking everyday because I'm unable to work and my anxiety and hyperactivity had been so stressful. My doctor said u won't be the same person anymore and won't be active and will suffer depression. I just want to ask what life is like and ur body is like after surgery and can't I just cover my neck if I go outside in a runner.

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NOTE THAT THIS IS MY PERSONAL EXPERIENCE, EVERY PERSON IS DIFFERENT.
I am a 47 yo man and been hyperthyroid for 3 years. I had total thyroidectomy one year ago.
Here are my last lab tests (May 2017):

TSH: 2,29 mUI/L (0,27-4,20)
T4: 11,64 pmol/L (12-21,90)
T3: 3,9 pmol/L (3,1-6,7)

Unfortunately "T4 only" didn't work for me. After the surgery (June 2016) I spent 6 months of nightmare (nightmare).
I was at T4 100mcgr/day for 5 months (I couldn't increase the dose because of palpitations and pounding hearth). Fortunately I
found a doctor that prescribed me T3 and the situation improved a lot.

Removing the Thyroid was my decision, and it was the worst decision of my life.
But there are a couple of things I learnt:

1) Removing the Thyroid is bad (unless you are dying of course).
2) T3 can help in some case.

I know that a lot people without thyroid feel "good", but simply this is not my case and the quality of my life has worsened.

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Hi everyone this forum is so interesting, I'm a female 31 years old and my doctor decided to remove my thyroid gland, in 3 weeks is my operation.I had a ultrasound and biopsia (right side) wich the nodule measured over 4cm and still growing but is benign.Now, my left side thyroid a nodule is starting to grow too, I guess because my dad had cancer and my family I'm a high risk.For precaution, I'm getting my thyroid gland remove but I'm little scared about the side effects.I read that's can cause hypothyroidism, low calcium and for consequences have to take pills for life.I think is the better decision I'm taking or should I wait and whacht out what's will happen?I don't know?!
Can I have a advise thank you

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Are you saying that you have a benign nodule and you remove the tyroid? this is pure medical crazyness... I would pay all my possessions to have my thyroyd (hyper but not malign) back... think more than twice before do it, 30% of thyroid surgery are completely useless, doctors only think about cut and sew
Good luck

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I had my thyroid removed in August of 2016 in Fargo, ND by an excellent surgeon that specializes in thyroid surgery. I was only in the hospital 24 hours from check-in to discharge. My endocrinologist had done the biopsies of my numerous nodules on two different occasions, three years apart, and when the last test results came back as "inconclusive", she suggested surgery as an option to continued biopsies and ultrasounds. Since one of my nodules was getting large enough to be clearly visible, it was really a no-brainer for me. Upon consultation with the surgeon, we all agreed that thyroid removal was the better action than just removing the nodules, and still having to have the thyroid regularly tested. During the surgery, the largest nodule proved to be as large as the dr's fist, and had obviously been growing inward toward my throat for many, many years and restricting my airway. Even though I had never thought that I was short of breath, the difference after surgery was remarkable. Luckily for me, none of my thyroid tissue or the nodules were malignant. During surgery one of my parathyroids had to be reattached and a second had been removed with the thyroid resulting in a complication that sent me back to the hospital 36 hrs. after surgery for blood monitoring and observation. After 2 days I was stabilized and sent home with orders to take D3, magnesium, and 2000mg of Tums daily. Within 3 months they had continually reduced the dosage of my Levothyroxine Sodium down to 112mcg, the same as it is today. Regarding my life following the surgery, my scar is completely invisible in one of the natural folds of my neck, my hair is getting thicker, I have more energy, and the Tums have caused the leg and foot cramps that I used to have on a regular basis to stop. In my opinion, the surgery was nothing compared to the stress and uncertainty of having the nodules biopsied and waiting for the results, and one small pill for the rest of my life isn't any problem. I am sure that everyone's situation will be a little different, and certainly for those people with a cancer diagnosis their follow-up is much more complicated, but from my viewpoint, this surgery was a piece of cake, even with my small set-back and re-hospitalization.

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Hi Everyone! I'm 45, female and waiting for my biopsy results. What I know is that I have multiple nodules on my thyroid, one that is so large it is coming into my aorta artery and also sitting on my larynx nerve. After multiple ultrasounds it looks like I have a suspicious lymph node and the left side of my thyroid is extremely small. So in March I plan on having my entire thyroid removed and if the lymph node comes out cancerous or atypical then I will have that removed as well. What I wanted to tell everybody is thank you. All the symptoms that everybody has been discussing are all the symptoms I have been having, some I didn't even know was related. My hair is thinning and I'm not sleeping and from the threads above say that that's related. I thought it was just me getting old haha. With my whole being hoarse off and on and the pain that I'm experiencing because of the nodules pushing into my neck muscles I was really struggling with whether or not to have the total thyroid removed or just half of it. In the end I decided I'm going to go for all of it because I would be faced with multiple ultrasounds in the future with multiple biopsies and constant monitoring. I know other people make different choices but to me I think total removal is the way to go and honestly that's what my doctor had recommended from the beginning. I originally thought I would only have half of it removed but decided I didn't want to go through all the hassle later. I just don't like the waiting for biopsies that may or may not be cancer. Thank you everybody for being here and for showing me I'm not alone. I'm sorry everybody is going through their individual issues but I thank you for sharing everything with me

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Hello...I am scheduled for total thyroid removal on May 10th. A little apprehensive due to the obvious. (fear of the unknown)
I have a large goiter and (4) small fluid filled nodules. My endocrinologist believes this is the right course, since I have hyperthyroidism and this is not going away. Could possibly get worse. I am worried about life after the surgery. I should never have resorted to the internet, because this has brought on more anxiety hearing the horror stories of not being able to swallow that well afterwards. This is what I am dreading the most. Now, I know that everyone is different and I'm hoping I won't suffer from this. Has anyone experienced this?

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