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EndocrineWeb Community Advice

papillary thyroid cancer

From: gstaris - 5 years 50 weeks ago

just have my thyroid surgery 2 weeks ago and find out that it was a papillary cancer.The doctor informed me that i have to go for another surgery to take the other half of my thyroid.I was really shock and scared knowing that i have a cancer.Is anybody there can share thier experience because I'm really feel alone and scared.I'm 55 years old

thanks,
gertrude

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9 Responses

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Hi Gertrude,

Just thought I would write to let you know that eight years ago I had the same operation a complete thyroidectomy followed by radioactive iodine for papillary cancer. After treatment I have follow ups but no major problems and went on to have a further two children. It is an anxious time but prognosis is excellent. Good luck
Natalie

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Hi Natalie,
Thanks with your reply it helps me .Really worries me knowing i have a cancer.Now I have to go through another surgery and thats scare me.

Gertrude

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Hi Gertrude,
Glad it helps hope it all goes well I was out in the same day and back in works two weeks later. My only advice is I wish I had taken more time to rest and absorb what I was going through. The scar has healed well and is almost not visible. Good luck

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Hi Gertrude,
I am going through the same thing as you are right now..I had the right side removed in july and sent for tests - two out of four hospitals it was sent to came back as cancer so in a week I will be getting the whole thyroid removed and then sent for the radioactive iodine treatment.

I am trying to be positive for sure but am concerned because the tumor they removed was 4cm. They all seem pretty casual about it.I just turned 40 in sept. Lets keep in touch, let me know how it goes for you.
Good Luck
Kelly

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I've never had thyroid cancer but I've been researching some more lately. Thyroid cancer actually has one of the best, if not the best survival rate of any forms of cancer.(5 year survival rate is approx. 97-98%, 10 year survival rate is still in the 90's).

You can check out Thyroid Cancer Canada, they have some good information and resources on their site.http://www.thyroidcancercanada.org

Thyroid Cancer Canada also has a good message board covering diagnosis, surgeries and treatments, recovery etc.

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I had my thyroid removed 1/3/11. 2/1/11 I start with the Radoactive Iodine shots. I was told they got all the pappillary cancer removed. Iam worried if there is any bad side effects to the treatment'Thank you
Freddy

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My husband had pap thyroid cancer 17 yrs ago with 7 positive lymphnoids @ the age of 42.. He has had RIodine 4 times in very large dose over the yrs tring to reach a 0 on tsh.The only thing we wish we would have done differently is to have taken out the whole lymphnoid chain.. which in the next few yrs we may still end up having it done.. reading above some of you have to go back in for second surg. to do the other half, I would discuss this option of having the chain removed with your dr.s it may save you a 3rd surg. down the road. Always get a second oppion.

Still to this day we have a little activity still showing in
blood work.. When we had 1st surg. they did a freeze on the surg. table and took all the thyriod and the 7 lyphs in that surg.
when we remove synthriod for testing tsh should be 0 and we are reading about 28 but these particals are to small to suck up the RI so we set and wait and we have done this for yrs.
if you have to have a cancer this is the best one to have we have had a few side affects from the RI.. but none that really effect his life.. remembering things is the biggest one.
If you live close to a cancer center I think that is the best place to go.. they are always up front and trusting
to give you the best answers and care... we live in the pacific north west and have just changed to the cancer center there for all his thyriod issues we are very happy with new team of drs.. good luck wish we would have had this site to look to for Q & A's 17yrs ago

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Iwas just diagnosed with metastatic papillary cancer. I am 55 years old. My tumor is 2cm. I have read a lot and literature seems to indicate that bevause of my age and size of tumor my chances are so,so. So far the cancer has spread to the lymph nodes in the cervical chain. I still have to get another ultra sound so the surgeon will know exactly where the cancer is. It has been 6 months since I discovered a lump
Has anyone survived this type of cancer after a total thyroidectomy and if so for how long ? That is essentially what I want to know .What is the survival rate in years if the cancer has metastasized and u are 55?

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