I've been on treatment for my underactive thyroid for around 5 years. I'm now on 100mg of levothyroxine and in all honesty I feel no difference now if I'm taking it or if I'm not taking it. I feel exhausted all the time, to the point I feel so tired that I get dreadful headaches and my face swells slightly. My doctors do not request regular blood tests, I have to ask for them myself. For around a month I've been really stressing the point to my doctor that I feel awful, so I asked for another blood test. My levels came back fine and therefore the doctor was basically saying my levels were fine and therefore that's that. I ended up in a doctors appointment crying as the doctor actually said the words 'you're only young, you'll feel fine a few days' which is so far from the reality of what I'm feeling. The doctor seemed like they didn't really know what to suggest and ended up suggesting I had blood tests for iron levels, diabetes, inflammation, and celiac. All these tests have come back fine, except the one for inflammation which I've got to have repeated in a months time. I've asked for my cortisol levels to be checked, which at first the doctor had never heard of, and after she researched it she said I could have a blood test, however I'd rather a saliva one as that's more accurate but they won't do it. The doctor just doesn't seem to understand and is treating me like I'm mad, continually asking if I'm stressed or depressed, which I know I'm neither of those. It's as if she thinks because these tests are coming back fine then it means I am fine.
Has anyone else had a similar experience? If so could you please give me some advise on what to do as at this point I feel like it's me whose having to suggest things to the doctor, instead of them trying to figure it out too.
Thank you in advance for any responses.
- Endocrine Disorders
- The Endocrine System
- Community Advice
- Patient Guides
- News and Research
- For Professionals