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Posted in: Hypothyroidism.

22 with hypothyroidism, desperate for help to feel better.

From: ksabelha33 - 7 years 3 weeks ago

Hello, I am a 22 year old female. I had a thyroidectomy when I was 19. My thyroid problems started when I was 18 and just spiraled downhill to the point that they had to take it out. I was always a very active and energetic person before this. Since having my surgery, I have felt the same if not worse than before. My doctor put me on synthroid when I was 18 and has not mentioned any other kind of meds to take. I regularly have my blood tested to make sure i'm getting the right amount but I still feel no relief even when it is correct. I was wondering if anyone has had bad luck with synthroid or something like it and found another kind of medicine that has really helped them. I can't go one like this, its such a task to even get out of bed in the morning after getting more than 8 hours of sleep. It has affected my personal life as well as my educational life. Please if you have anything that you think might help me share with me. Thanks.

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I hear you. I am taking syntroid and still feel tired all the time. I got a second opinion today and she told me because my # are within normal limits me being tired had nothing to do with my thyroid and wants me to get a sleep study done for apnea. I would like answers too. I seem to get nowhere. I will keep looking.

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hello, I am just like you, I need a lot of sleep for me to wake up actually feeling wide awake. I'm just not as eager to do things as i used to be. I feel like I am missing out on things because I can't be bothered. I used to be fit and energise but I'm not sure what 'normal' feels like. After all one seventh of my life has been spent with the disease. I take 40 milli grams a day, i think, of a different medication, eutroxsig, or something like that, you would think I would know haha. You have to learn how to change your day and typical daily things to fit in with what your body requires. I usually need ten hours of sleep so maybe more sleep. Have a little more medication when your feeling particularly tired. Only you know what feels right for you. Maddie

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i am 22, and I have borderline hypothyroidism??????? I unfortunately do not have health insurance have tried everything...I make too much for medicaid, but not enough to pay a few hundred on a policy,I have no dependents, and trying to figure that out. I feel too sick to go to school and work all the time and because I am not a full time student and over 21 I get thrown off my father's policy. Many of you know how this goes. Now, I've been going to a health center and they were testing me because my GYN was trying to find out why I was losing weight so they told me to come to a primary. They had supposedly found a lot of keytones<-probably not how you spell it....but in my urine. The health center had told me that my keytones were fine but had noticed my thyroid levels were borderline not enough to start a medication but wanted me to get a ultrasound. I have been going through a struggle trying to get this done. At the same time, I was also getting a ultrasound for my pelvic and abdomen area , Where they then found ovarian cysts and a ruptured uterine fibroid. With my neck a very large thyroid. Didn't expect that to rhyme. I'm very energetic and upbeat but I feel these two things are controlling my life. On top of all the stress that I have accumulated with the weight loss, pain after sex, I wasn't sure what was going on. I had started having these mood swings and paranoia towards my boyfriend. I basically pushed my boyfriend away with my moody behavior, I became extremely lazy all of a sudden when in May I was working 3 part time jobs. I quit my other two jobs to go back to school in beginning September and all of this happened. My ex boyfriend is still there for me but I don't think he takes it seriously. I have to try and contain my crazy thoughts about him because on more than one occasion I had accused him and was nowhere even close to having anything, just flipping out over anything. It became embarassing when I would be wrong. I never wanted to have sex and couldnt explain why....that was then though. I guess now I know. Its been real hard adjusting to affording my regular bills and health bills. I feel like I cant get up in the morning with stomach pains and feeling sluggish, and my doctors were just acting like I was crazy and tried to prescribe me a anti depressant.. It wasn't until after they received my results and referred me to specialists. I'm so emothional, ALL THE TIME.I just want to get better and on top of this I just found this out late september and still havent had any treatment or medication and I have been feeling a lump in my throat only when I swallow though for almost a year now just rarely. I thought it was me being nervous or hungry. I feel it way more now, my body is in pain and always cracking whenever I move around. I fall asleep if im comfortable, even if I just woke up. I'm so skinny its disgusting all my size 0's are even loose on me. A darn Wii told me I was underweight. I go between 90-99 lbs depending on the day.......yea and I'm only 5'1 .Im having problems keeping my train of thoughts when I talk and tell stories. My brain is just not functioning the same when I need it to. But my doctor said since my levels were borderline at first she didn't feel a need to start medication but since it appeared so big she wanted me to start some pill. I don't even know what I'm in for but I'm so scared and I don't feel anyone thinks it that serious who knows me. The doctor's keep telling me your everythin looks good you just have to do this and that. With the specialists...... not them. I guess I don't really have much questions but I feel I might jst need some words of wisdom and some truth about what I'm going to go through. Thanks ;-)

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PLEASE TAKE THIS ADVICE FROM A 53 YR OLD MOM! Go to parathyroid dot com and look up what the world's leading expert has to say about hyperparathyroidism!!! ASAP, please and let me know what you think?

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Chances are very high that you sustained damage to one, some or all of your parathyroids during your thyroid surgery. Did you know that there is only one tiny arterial/veinous blood supply to the parathyroid that is about the size of a human hair? Can you imagine how difficult that would be to have a thyroidectomy and not sustain any damage?

To answer your question, yes I was prescribed a "clinical trial" of synthroid by my PCP over 20 yrs. ago and had to go off of it immediately. Was horrified to read years later about a class action lawsuit against it makers!

Short end to a long story, after over twenty years it was my PARAthyroid causing all of my difficulties. Please get the best answers ever at "parathyroid" on the net.

I know you posted this a long time ago, but I wanted to give this a mention!

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Hi, I was told for 20 years that I'm just crazy, nothings wrong, take these anti depress. Please look up Celiac Disease on the web. National foundation for Celiac Awareness. I have Hashimoto's, Hyperparathryoid, PCOS (also look up this one) and was very Anemic. Everything I have has been linked back to Celiac Disease. There is a test you can take on line to see if things line up. Then you have to make your Dr. listen. that's how I was diagnosed. I had to insist on a blood test and go from there. It won't fix all the other auto immune problems I have, but I feel tons better already and I'm healing. Hope this helps. God Bless!

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Firebird56, would love to chat, I have been fighting with my health for over 20 years. I have Celiac Disease and they are just now saying that there is a link between that and hyperparathyroid. I would love to get information on some of the stuff you are saying, I just today emailed Dr. Norman. I have for over 5 years been dealing with my parathyroid issues along with Hashimoto's. I don't know my way around this web site yet, but let me know if there is a way to chat. Thanks & God bless!

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I am 33 years old and at 22 was dealing with similar circumstances. Have you ever been tested for PCOS? I was diagnosed with endometriosis at 22. Now at 33 diagnosed with hypothyroid. Hmmm...Docotors don't listen!!! I have been telling mine for 2 years I think I have PCOS, no one will listen. I am single, never married, I think I have driven away everyone i love with my crazy hormone rampages. I have come to discover that 3 weeks of me is not worth the one week of "crazy pyscho."

My Dr.'s never thought it could be PCOS because a system is extreme weight gain; the only 1 symptom of 16 not present. I'm 5'4 and 115-119lbs.

Have them test you, don't take no for an answer!!!! Poly Cystic Ovary Syndrome. Can be linked with Hypothyroid, Irregular Painful menstral cycles, mood swings, fatigue, depression, etc,.

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I was diagnosed with Endometriosis, Hypothyroid, then PCOS, thank you for the suggestion. I know for 20 years I have been crazy; but only 25% of the time, hormonally, and beyond my control!!!

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Hi
My daughter had the same symptoms as you. She went to see an obgyn. The doctor recocnized her symtoms immediately. She takes the pill and now has three normal weeks without tantrums and misery ,Only the week of her period can be a little uncomfortable. Take care Sondra

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