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EndocrineWeb Community Advice

12 years and discouraged

From: purselady30 - 7 years 7 weeks ago

Can someone please tell me, when your taking your synthyroid aren't you suppose to feel better?? I have been taking synthyroid for 12 years and I still feel crappy!! I'm still extremely tired, cold, my hair is falling out and I have no sex drive. I have been to numerous doctors and they run my blood test and always tell me "it's normal". I just finished reading the article from endocrineweb regarding hypothyroidism and in the body of the article it says that just because your blood test come back normal, it doesn't mean it's normal for you. THANK YOU!!! Everyone is different and I don't understand why these doctors don't agree. I just want to know if anyone out there is experiencing the same problems I am. I need to find a really good doctor, but I don't know how to find one. Any suggestions????

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Good morning :)
This may sound like a blond answer to your question,but my first response to your question is this. Are you seeing a endocrine Dr. ? if you are , maybe see if there is a different endocrine Dr. you can see for your concerns.

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I have hypothyroid and hashimotos. I have been on synthroid for over a year and feel like crap too! I am currently scheduled to get a second opinion. My first endocrinologist didn't do an ultrasound just a simple tsh. Not real happy with what he tells me. I told him my hair is still falling out, I am extremly tired, have no interest in doing anything physical and my hands are cold. He told me to get out more and lose weight. Then sent me on my way. So I am going next week to another Dr. for a second opinion. I will post any new info. I am very interested in what she will say.

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I was on 50 mcgs of Syntrhoid for a while, then 75 mcgs, and now 88 mcgs. The blood tests after being on all three doses were always normal. I simply kept telling the endo that I felt quite poorly with the related symptoms you describe. Just kept pushing for an answer and my synthroid dose would be increased. At 88 mcgs. my labs are perfect and I feel better than I have in years. However, I also exercise 4 days a week and that has made a significant improvement in how I feel. Good luck. Participate actively in your medical care. Take care.

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I would suggest looking into medications different than Synthyroid. I was diagnosed about 7 years ago and after 2 years of synthroid I had seen basically no improvement (and in fact I was more tired and losing more hair) but my levels were considered normal. I told my endocrinologist that something had to change and he recommended Armor Thyroid. Armor Thyroid is different because instead of just containing T4 it also has T3. Synthyroid only has T4 and relies on your body to convert T4 into T3. Some people's bodies don't do that well.

However, currently Armor Thyroid is having difficulties with back orders and other changes. There are other options, which I'm currently trying to look into (but don't feel comfortable recommending yet). But bottom line is that I would try to find an endocrinologist who is willing to offer suggestions or change your current dose because of your levels AND how you feel.

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Hi, there's no one size fits all to the question. There's many things to consider. Are you taking the meds away from food at least 1 hour before or 2 hours after a meal? If you don't the meds will not absorb properly. Perhaps it's the food you eat eg. eating large amounts of broccoli, cabbage, soy, milk, dairy- because certain foods can interact with thyroid conditions. Despite normal levels your body will not cooperate. Or perhaps you need to supplement with other nutrients to help your body regulate itself. eg. zinc, selenium foods can help. There's lots of things to look into. Perhaps your diet is lacking in some other nutrient??? If you go to a library or bookstore there's many books that can explain better than I can about thyroid nutrition & the importance of vitamins, which foods can hinder or help etc...

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Purselady30, I know exactly how you feel. I have been treating for 17-18 yrs and am going thru the same thing. I also am having muscle weakness and joint pain, these just started within the past yr. I hope you find the right Dr to help you. I am meeting with a new one tomorrow. Good luck!

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