EndocrineWeb Community Advice

Thyroid nodules and anxiety

From: blessedby4 - 3 years 8 weeks ago

About 6 years ago Dr.s found a nodule in my thyroid during a ct scan for a car accident related injury. At the time they did a biopsy which came back negative for cancer so we have just been watching it. Recently I started having alot of weird symptoms so I went back and after having it rechecked they found that not only has it doubled in size it is now messing with alot of my thryoid levels. I am still in the process of getting more testing done on it to figure out what the best course of treatment is going to be, however until that happens I am trying to do my best to deal with the new symptoms. Racing heart rate, constant nervousness/anxiety, general feeling of being on edge constantly. Has anyone else had to deal with this? How did you handle it? My regular dr. has tried 3 different medications for me (all SSRI's) but they have only increased the anxiety. I am starting to feel a little hopeless about ever getting rid of this unwanted anxiety. I would love to hear how others have dealt with this.

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Hi blessdby4,

I have recently been diagnosed with hyperthyroidism caused by nodules, and I'm terrified. I feel that someday the doctors will destroy my thyroid. I'm also afraid of liver failure from the methimazole that I will start to take after my upcoming uptake and scan. I also think I will get cancer down the road because of my treatments.

I need knee replacement surgery. They won't operate until the hyperthyroidism is taken care of. In the meantime, I cant walk properly, which means I can't work. I was scheduled for surgery this month until they found out about the thyroid. I have had no income since June 2010 and, because of my thyroid, I don't expect to return to work until April 2012 at the earliest.

I also have trouble sleeping. It's nasty. My main symptom is tachycardia, which is being treated by the beta-blocker metroprolol. It's not really working. My heart rate is still too high. This drug is supposed to relax me a little, but it doesn't. It's impossible for me to relax. I am very frustrated, unhappy, pessimistic, and depressed.

Both of my drugs can cause weight gain, which is something I can ill afford. In order to try to control both my weight and my thyroid hormone, I am going to try to stick to a anti-hyperthyroid diet of soy, broccoli, cauliflower, peanuts, turnip, and other goitregenic foods. I will also avoid milk and wheat. Others have suppressed their thyroid hormone production by eating like this.

On top of everything else, I don't really like my endocrinologist. He's callous and lacks empathy.

So, you aren't alone in this. I personally believe the stress I had with potential knee surgery had a lot to do with knocking my thyroid out of whack.

Good luck.

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I had a partial thyroidectomy when I was 23 to remove nodules. I am now 55 and have had no problems since the operation. I was on medication for 12months before the doctor decided it would not stabilise by itself. I was of child bearing age so they would not give me iodine as a treatment. I had a hard time with the anxiety. I felt that everyone could see my hands shaking. I was on medication for the tachycardia and that helped the anxiety a bit. I was on anxiety related medication. After the operation life returned to normal pretty quickly. I had all the symptoms you describe and had counselling to help me deal with it. It was stressful having to try the thyroid medication for 12 months before I would be considered for the operation but it worked in the end. I was seeing an endocrinologist not a regular G.P. Hope this helps. Medical treatments may have changed in 30 years.

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I was diagnosed with a hyperthyroid 16 months ago.My doctor put me on methomazole and I noticed the second day I took this medication that I could swallow pills again, my anxiety level went down,my insomnia went away. It was a miracle. I still don't feel normal, but I do feel better.She put me on 10mg and it seemed like too much, I was exhausted. She checked my blood level again and agreed to cut the medication down to 5 mg and that seemed to work. She is monitoring me to see if my thyroid will reboot or burn out. What ever is going to happen I wish it was done already. I haven't felt like myself for 16 months.

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I have to make a few updates to my earlier post. It turns out that my hyperthyroidism is being caused by Graves, not my nodules. The metoprolol has finally reduced my heart rate.

I am still afraid I'll lose my thyroid someday. I'm researching alternative treatments to be used in conjunction with the Methimazole.

This seems to be an autoimmune disease. The thyroid itself is actually OK.

I'll be on Methimazole for at least a year; hopefully by then I'll be in remission.

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I am feeling you sweetheart. I've been hyperthyroid for 12 years. I had all those symptoms and many more at the beginning.

If the heart symptoms are severe or chronic, ask your endocrinologist if he can put you on a heart medication for a little while. That helped me a lot. I also had to go on an anti-anxiety med. I never had a panic attack before my thyroid condition started. I know it is a really terrible feeling, but you will get through this. You really need to be under the care of an endocrinologist. Get everything done asap so you can get on your meds, and get this under control. I know it can feel like an eternity, when you feel like this. I shudder to remember how it was for me (very bad). And don't worry too much about the biopsies. I have to get one every 9 months. There is a very small chance of cancer, and every reason to believe that this can be controlled by meds, in most cases. I am thinking about the surgery or having mine nuked, just because I am sick of dealing with it.

Hang in there. It will get better. And ask about symptom management, til your hormone levels are brought into range. Doctors don't know how awful this feels, and you don't deserve to suffer while you are waiting.

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i have had the same problem for years but recently the anxiety and on the edge has become worse..if you find out how to contain it please let me know this is pretty scary for me also=(