Here is my story and it’s been going since mid of May this year ( 2010) !
I am 50 years old guy.
I have been taking hypothyroid pills , syntroid, since Dec 2005. My tsh level at that time was 17 and my family doctor started me on .05 synthroid. She would check my tsh level 3-4 times a year and would adjust the dosage … in Jan 2010 I was at 0.1. I have never had any symptoms of hypo nor did have any side effects or strange feelings!!
All this change this year in May. I felt numbness in my right arm for 5-10 min. Went to check with my doctor: immediately she started me on “water” high blood pressure pill and sent me to neurologist. Neurologist did all test ( it took me a month to do 2 MRI – brain and neck, Doppler, holter, ecg 2times……) all was negative but since the 2nd day after I started the high bp pill I started getting chest pain… ended up in emergency a couple of time… all was fine… ECG was fine as usual…With the chest pain over night I would get pins and needles feeling, tingling…. Light headiness
I was taking syntroid at night before going to sleep and would wake up sweating around 1-2 hours after….3 days after, my doctor prescribed me ramipril bp pill and removed the hydro pill. I felt better but the tingling stayed! I felt awful! After a week on my own I stopped taking synthroid for 2 days and tingling disappeared! I told my doctor and she said: don’t take it! I stopped taking synthroid for a month and no tingling! I slept well!
After a month ( end of June ) I did the blood test and my tsh level was at 42.09! I had to take the synthroid again ( I also tried eltroxin and it was the same ! ). As soon as I started it ( 2 days after ) I started getting tingling and sleeping problems. Dr said don’t take the bp pills. I stopped that but nothing changed: tingling was still there…
On my own I started from 0.05, increased to 0.075 . I would be fine for 3-4 days and after 2-3 days was back… and so on…week after week! As soon as I got back to 0.1 was the worst! My tsh level after this period was 2.35 ( August 15th ).
I went back to dr and she said this is because I was changing the dosage and she said go back next 2 months take the 0.1 pill! I said, I can’t take 0.1 because I think it is too much, most likely I get hyper thyroid! I convinced her to take 0.05 synthroid.
I was taking 0.05 whole August and September… I would be fine for 3-4 dyas and 1-2-3 days would come back! I convinced my doctor not to wait for 2 months and check the tsh again ( she does not check T3 and T4 test which I asked you why not! She explained that the hyper is rolled out! ). My tsh level was 3 ! on 0.05 synthroid.
I asked dr a couple of times to refer me to a specialist ( endocrinologist ) and she refused! They don’t deal with simple cases like me, family dr does!!! I argued with dr that we are at beginning after 5 months… and the last diagnosis was that all of these tingling is due to my anxieties !!! She suggested to take some pills against anxiety: Lorazepam. I refused!!! It old ther that she sees me as a nut case… I have no idea what to do !
I called a couple of family doctors to get the second opinion… they don’t do that!
I am stuck….still 3-4 days am fine…. And 2-3 days a week back to tingling “mode”!!!
Now I don’t know is it really anxiety or hypo, maybe hyper or who knows what! I am waiting for a miracle to stop this and don’t know what to do!!!
If anybody has similar story and found the way out please share it…Thanks
By the way: apparently I have history of high blood pressure! Since the first day I’ve seen a dr, dr would say: are you nervous? Your bp is high for your age!
In last 5 years, closing in 50’s, my dr took It seriously and tried to put me on bp pills! I refused until May when I had this numbness : I guess I have to take the bp pills ! It was bad timing.
I don’t go to dr to check my bp anymore, I do it myself at home: and my bp is just fine: mornings: 115/75, and night: 125/80! If I go to see a dr ( usually during a day it is: 140 and up / 90s and up!!!of course! If I sit down and relax it comes back down to 130s and 80’s!!!
I exercise every day and am in good shape