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Posted in: Hyperthyroidism.

Hyperthyroid and weight GAIN

From: krall - 5 years 1 week ago

Hi,just wanted to find out what everone else thinks about weight gain. When I first found out that I had a hyper thyroid I weighed 120 lbs. NOW after about a year I can't seem to loose any weight. I am up to 150 and I am sick of gaining more even though I work out like crazy. Doesn't seem fair and I need some advice please!

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I am in the same situation. I have steadily been gaining weight. I thought it was the beta-blockers I was on, so I greatly decreased how much I was taking. I still seem to be gaining weight and it is depressing. I'm tired all the time to begin with, but the weight gain is just too much to deal with on top of everything else. I've already suffered a miscarriage due to the hyperthyroidism and it's taking forever to get any help.

I've had well over 10 blood tests and two hospital scans, I'm now awaiting a meeting to try medication instead of getting my thyroid removed. I was pregnant when I was first diagnosed so radiation is not an option since I still want to get pregnant again soon. However, my thyroid levels are raging (for the last 4 months) and I'm gaining weight and I'm not on any medication yet. My vision is starting to blur and it's making me angry that treatment takes so long.

My T3 levels are particularly high and I'm gaining weight. I've been watching what i eat and don't know what could 'cause this?! I'm also irritable and tired all of the time.

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Wow, me too.. I weighed 120 lbs and now weigh 150..I've NEVER weighed this much!!!!

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I was diagnosed Hyperthyroid 3 years ago. My appettite grew and grew. I could eat a whole 8 in cake, and not be stuffed! Once I got on PTU, it stablized, but now my metabolism is slowed because of the meds, which makes it really hard to lose weight. I developed a rash from the PTU and was switched after about a month without meds to Methimazole. But during that month, I was able to lose 15 lbs! It came off so quickly doing low carb and exercizing for an hour a day at the gym. But then the Methimazole kicked in, and slowed everything down, so I'm almost at a standstill as far as weight. I sleep a lot better though. But when I go back to the Endo, I'll ask if I can lower my dosage some and see what he says.

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Hello. I, too, am fighting a similar battle. I suffered a m/c in November 2005, had a successful pregnancy/birth in December 2007, then another m/c in March of 2009. I was diagnosed with hyperthyroid in July 2009. My TSH was at 0.1, T3 at 30.0 & T4 at 4.7. Symptoms were excessive heat intolerance with terrible night sweats, tremors, enlarged thyroid gland, increased appetite, and weight gain. I, too, want another child, but my cycles were irregular to begin with, but have become regular since being put on Propylthiouracil, though I am not sure I am ovulating. I've made an appointment with my OB/GYN who advertises infertility treatment this upcoming Monday. I expect to have to have the medication increased, but am not sure since have been on 100mg 1x/d since 3/10. My advice, find a dr you trust, whether OB/GYN or ENDO and stay on top of it. I wish I would have, but am going to make up for it now. Keep us posted as to the weight issue as I am also hoping to take up running again to aid in managing it and hope I will be successful.

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Ugh! I am so with you on the weight gain!

Before I was diagnosed, I was starving all the time. I didn't gain weight, but I didn't lose any either.

Once diagnosed, I was prescribed 10 mg Methimazole . During this time, my weight stayed the same. The doctor then upped my dosage to 20 mg and POOF! I GAINED 20 lbs in 2 months!!!!! It was horrible. My hair also fell out in clumps-so I was getting fat and going bald-fun!

Because my energy level was soooo low I could barely function, I knew I was on too much methimazole. I had to beg the dr. to run labs early so we could switch. Slowly over the next few months he brought me down to 17.5, then 15 then 10 mg.

I feel better now and haven't gained anymore, but I can't lose anything either! It's very frustrating, isn't it??

It's so hard to find the right dosage. It's been a year now!

When I hear about people who have been sick for years with this it's depressing! I thought once levels were figured out you just stabilized and felt good, but I guess not. =0(

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well, I started getting the "blah's" probably shortly after graduating high-school. I was about 200 in my sophomore year of highschool, but by college even though I had an active livestyle, I boosted up to 290 pounds and by the time I was out of college I weighed 310 lbs. After college I played dance dance revolution literally 3 hours a day for 3 months, and was down about 60 pounds. Granted, I was playing on "hard" and literally burned about 2500 calories a day playing it, however my diet consisted of a fruit smoothie in the morning, and a small portion of food at night. But after getting a job, who had time to workout hardcore for 3 hours? I immediately gained 20 lbs, and by the time I was married in 2008 I was at 265 lbs. Now I'm back up to 303. I even went vegetarian for a month and a half and only lost about 4-5 pounds! I can't handle the heat, and I can't seem to lose the weight. I'm not gaining anymore weight either. I seemed to have plateaued. Even with drinking extra water and working out hard for an hour a day, I still bounce between 289 and 300.
It wasn't until a few months ago that I went to the dr. for a test on a bump in my lower back, just to find that it was fine, but my TH levels were really low indicating Hyperthyroid. Went to an endocrinologist and was diagonosed with Toxic Hot Goiter. Benign tumors covering my thyroid!
So I took the radioactive iodine and won't find out until march when my hormone levels are not in thyroid storage anymore.
Weight loss sucks when dealing with the Thyroid. Also can't stand hot places, and I am so sick of being fatigued all the time! I'll sleep 10 hours, and take a 2 hour nap in the afternoon and still feel like I haven't slept enough!
I feel your pain!

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I read on one of the blogs that when people get the tumor removed they gain weight. But I feel the same way I work out and eat right and I cant get the weight off with my hyperthyroid.

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I am new here. I am in Australia and a 64 y o male. I have had my thyroid gland removed...2007, subsequent biopsy revealed follicular cancer which seemed not to have penetrated the thyroid wall. I had a precautionary ablation with iodine 131. Seeming ok so far.
I didn't experience any notable weight gain but that may be due to my smoking 30 cigarettes per day. I was about 80kg at 1.7 metres.

I thought you would lose weight if you were hyperthyroid? Were you referring to the effect of the medication taken to treat the hyper condition?
I gave up smoking in early 2009 and packed the weight on then. I am now 100kg...alas I haven't grown any taller.
Phillippe

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I have the same problem I thought the medicine would help to have a stable weight not to increase my weight. I have my thyroid and am on medicine to control it. They have me on levothyroxine I haven't heard of the medicine that you are on.

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Hello,
I am a 53 year old woman,very active,thought healthy, a year ago this March 8th I had a heart attack due to a "Thyroid Storm" in the hospital I was diagnoised with Graves disease. I am on 60 mg. of Tapazole, beta blockers, I had another "thyroid storm" this Christmas. Did NOT sleep for seven days.Was put on very high dose of librium to try to calm my body down and get some sleep. I admit I dont take the full dose,dont want to have to depend on it. I only average four straight hours asleep a night. I am very "hyper" I have great anxitiy,dont sit still so I am confused most of the post here say how tired/weak they are.

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I was diagnosed with hyperthyroid in 2000. After TEN years on methimazole starting at 20 mg, i gradulayy lowered my dose and now take nothing. Granted it did take 10 yrs but anything is better than taking radioactive meds to kill my thyroid. No thanks. Finally I am able to lose some weight. It was a steady gain fo 10 yrs. Every 6 months or so I lowered my dose even just a tiny bit, getting blood test every 4 months to make sure I was ok. Sometimes I had to go up a bit on methimazole and sometimes I took less. But it worked! Methimazole is cheap. I still take 1/2 of a 5 mg every few days. I need to get another test to make sure i'm ok. Once you have hyperthyroid you kind of know the rushy fast heartbeat out of breath feel =hen your counts are out of whack. My heartrate has finally gone down and don't have to take much in the way of beta blockers.
Hang in there. It takes time but many people can reverse hyperthyroid. I am 67 now.

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It's nice to hear that I'm not the only one with these symptoms and concerns. My doctor doesn't seem to like to entertain my thoughts about what has been happening to my body. It's annoying. And I'm glad there's a place I can find learn from people with similar concerns.

I'm 27 and have never had any kids and are not planning on having any in the near future. I'm currently on a 5 year IUD to keep that all in check. There was never any family history of thyroid issues.

I was first diagnosed with HyperThyroidism just a few months ago. It's been a hellish battle. Earlier in the year I had a bad case of tonsillitis which caused my body to attack itself. The auto-immune disease, whatever it was, developed into a thyroid problem. After months of bloodwork and radiation tests they came to the final diagnosis of hyperthyroid. But none of my symptoms corresponded.

I've gained close to 30 pounds, my body is always cold and I have trouble sleeping.

I've been on beta blockers and methimazole for 3 months now. I'll be starting radiation to reduce the size of the goiter on my left thyroid where the hot nodules are located.

And all the time, my appetite hasn't increased, nor has my eating habits and my exercise regime has stayed constant. But the weight gain is out of control.

Right now I've been toying with the idea of surgery over radiation. Thinking that maybe if I just get the goiter/nodule removed, my body will get back to normal.

What I'm hoping to do through this blog and other sites, is find out what has happened after hyperthyroid treatments? Does radiation fix it? Would surgery be a better option? I know it's a completely vain subject but, which option gets me back to being me? The me before all the weight gain?

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I am female and 51 y/o. I was diagnosed with hyperthyroidism in 2000. I was on the Tapazole also. In 2002, my asthma suddenly became very severe and not controlled and I was placed on very high dose steroids which I remained on until last year. I was already gaining weight from the hyperthyroidism, and the steroids just made the weight gain ridiculous. I have a hard time determining symptoms because my asthma flare symptoms are the same as the hyperthyroidism symptoms as far as heart rate, hot flashes, shortness of breath and fatigue go.

I have developed osteonecrosis from the steroids and have a hip replacement. I am too tired and in too much pain from bone/joint/muscle damage to excercise. Sooo, I feel for you. Been there.

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some of you are killing your metabolisms on top of it all. You cant eat like a bird and lose weight. I am in the same boat with many of you. but the last way to lose weight is a smoothie the am and a bird like meal at night. You have to eat 5 small meals to stimulate your metabolism. You also have those meals well balanced. I cant lose weight, but Im not gaining a ton of weight either. I exercise 1/2 hour per day and eat 3 well rounded meals. I know it should be five...usually the other two are grapes and an apple. Trust me when I say you make it all worse by eating barely anything. an if some of you are exercising as much as you do and are eating little, that dying metabolism is only getting worse by the over deprivation of calorie loss...you have pushed your bodies into starvation mode and your body will hold onto every morsel you eat and turn it into fat. Starvation and extreme exercise are not the answers.

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I am in the same boat. I have been through hell the past 3 months with my heart beating irregularly, breathing problems, chest pain, a huge unfulfillable hunger, and weight gain. They could not figure out my problem and would not let me work, then a few weeks ago a random doctor decided to check my thyroid and my TPS was well below normal. I am on beta blockers now and starting to live a normal life, and cant wait to start treatment. I hope the doctors were able to help you and if you have any advice please share.

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Have you ever got the answer? I have the same problem, too.

After I had my thyroid scan, my body just never the same. I kept gaining weight and losing hairs. Getting anxiety, losing sleeps and frequent panic attacks. All symptoms toward Hypo thyroid but then my doctor said I am hyper thyroid according to the blood work result. I have been working out 2 hours a day and I am still gaining weight. Salad for lunch, potato and boiled eggs for breakfast and light dinner. What is happening to me? They are going to cut down my dosage on the thyroid pills. What should I do? Am I going to became thousand pound fat thing? Please help me.

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Hi Krall,
I joined this forum because i saw your post...i am going thru the same problem. i was 120lbs and found out about my thyroid issue in november 2011. within the first 6 months i gained 25lbs and no matter what i do, im stuck at 145lbs.

i cant excercise because my heartbeats are greater then 100/min. i am on heart medication (propranolol). started with just 2 tablets/day (10mg) and now im up to 6 tablets/day.

I had RAI (radioactive iodine treatment) done a little over a month ago because i was allergic to all the thyroid medications like methimazole and propylthiouracil. I took the prop...fist for a few months and had many side effects. Finally, my endocrinologist put me on methimazole because she stated i was pregnant because of all the weight gain. she also told me i ate too much where in reality i didnt. i watched my died carefully and still couldnt lose even half a lb. I was so upset. i got a huge rash all over my body (huge red spots) after that medication and finally decided to do the RAI.

It was a new experience....i never thought such a small pill was powerful enough to hurt other people that it needed to be stored in a 20lbs metal container. The second i took the pill i got very dizzy. when i got home (no one could stay with me for 3 days and 5 days for children and pregnant women) i was tired and still dizzy until night time. my head started hurting SO BADLY! i thought i would die that night. i managed to fall asleep and the next day i had no migrane at all but my throat was swollen to the point where i was seriously choking on my own saliva. (i had a big thyroid...it was 5cm on one side and 4cm on the other). i was lucky enough it wasnt inside my throat cause it would've choked me.

now its been over a month since the RAI and my thyroid levels are higher then they ever were. it takes up to 6 months for it to work and kill your thyroid but since mine increased, i got more and more side effects. i became VERY nervous and stressed and have nose bleeds every day for the past month. my doctor put me on a special diet to calm my stomach acids but if this doesnt help my nose bleeds and heavy cycles then i will be on stress medicine.

i am 22 years old and i have never imagined going thru this huge and serious issue at this age. Im scared that the RAI wont make me better...idk what comes next. everytime i see my doctor i find new problems. One big scary issue is that no one told me, or anyone else who has done the RAI about the effects of it...its very scary going to the doctors and finding out that your eyes are popping out after the treatment. (i dont remember the name of this but ill update it once i remember). ive lost half of my hair, had to cut it shoulder length. my vision is so much worse. i had lasik done in 2009 and my vision is worse then it was without lasik. my skin is dry and flaky. skin color is yellowish. fingernails are finally growing instead of breaking (i started taking biotin). im fat because of this illness. i cant wait for it to be over. I wish you girls all the luck. ill keep you in my thoughts and prayers because we all deserve to be healthy again. <3

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The weight issue is beyond frustrating. About 5 years ago (before thyroid issues) I was able to lose about 80 pounds over a 1 year period.

Then about 10 months ago, I gained 40 pounds in 3 months! I am not a big eater. I tried low carbing it but that didn't help. I have tried excercise but then my heart rate goes through the roof. Although some of my symtoms have subsided, I can't seem to lose weight no matter what I do. Low-carb, low-calorie, nothing. Is there anything that works??

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I don't have an answer for you but I feel the exact same way as you.

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Hello, I have been suffering with Thyroid disease since I was 15 years old. I am not 27 and have been diagnosed with Hashimotos. I have a rare case I feel after reading online about Thyroidism. From the age of 15 I was hypo and still very thin. I have always had an issue gaining weight and at my best was 112 lbs. I always found this odd since I was hypo, but was told that it doesn't necessarily mean weight gain. While 2 years ago I was blessed with a daughter and had a very normal pregnancy. Months after giving birth, I went to see my doctor and was told to stop taking my medication bc I was now hyper and had too much of the hormone in my system. I have stopped the pill for about 8 months now and have continued to stay hyper- losing 6 lbs, which is a lot for my stature... My doctor has put me on 10 mgs of Methimazole and 10 mgs of propranolol. I know it's a very low dosage, but I am assuming it is bc I am so thin that she has given me so little... Is it possible to gain weight with this dosage? Has anyone had issues gaining weight on Propranolol? I really need to get back to a healthy weight. My doctor and I will be discussing either surgery or radiation in November. Any information on those procedures will also be appreciated. Thanks. :)

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Hi ,
I'm so glad I googled this topic. I was diagnosed with hyperthyroidism today :( ... I'm waiting for an appointment to see an endocrinologist.

I'm scared of the weight gain as it is so hard to lose weight.

I've always been the chubby one and I'm afraid once I take medications my weight will go higher and higher.

Because of my heart palpitations I might also be given beta blockers ... Just the thought of having this scares me already.

Any advice anyone can give to cope during this time would really be appreciated. I haven't started any treatment as I'm waiting to see the specialist.

Thanks

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Hi. I was just diagnosed with hyperthyroid. I have lost over 20 pounds in about three months. I had muscle pain mainly in my lungs, sweats in the middle of the night, and i could not sleep more than 5 hours a day. I thought i had a problem with my lung because i would also have the coughing spells that would leave me breathless. Well i went and got tested for everything you can think of and all came back normal but my over active thyroid. I hate losing so much wait. I'm 40 years old. I want my weight back.

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I'm writing on behalf of my husband, who has been taking high blood pressure medication for three years now. Recently, it was discovered that his testosterone levels were low and began a cream treatment for that; after only two weeks, his ankles began to swell and had to discontinue the testosterone per his endocrinologist.

Meanwhile, one of his last blood tests showed elevated levels indicating hyperthyroidism. He always feels "hot" and begins to sweat profusely with minor activity. AND, he has gained weight without changing his diet or activities.

For the people here who are experiencing weight gain with hyperthyroidism, is the weight gain a result of your treatment for the condition OR were you gaining weight without being treated for hyperthyroidism?

This is very confusing to me since everything I've read indicates weight loss (not gain) as a typical symptom of hyperthyroidism.

Any help would be MOST APPRECIATED!

Thanks, Swoosieque

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hello. i understand what your all going through. i actually had graves disease for years and didn't know it. when i was about 15 i could eat and eat cause i was always hungry! never gained a pound. i was 5' 4'' and 145 lbs and fit. horrible anxiety heat palpitations the works. i got pregnant when i was 15 and a lot of those symptoms disappeared. when i wasnt pregnant the symptoms came back. come to find out when your pregnant your thyroid naturally drops so my thyroid was in normal range when i was pregnant. so after years of my thyroid swelling more and more and me going from 145 to 286lbs a doctor finaly sent me to an endocrinologist. the doc took one look at my thyroid and my numbers and said you have graves disease. my thyroid at this point os huge. so i asked him why i was so heavy wit hyperthyroid and he tells me some people dont have that reaction to it and they're metabolism jusy doesn't cooperate. so i asked him if the meds would.make me gain weight and he said it shouldn't. so i started taking it and i did gain a little more. they went ahead and did the radioactive iodine therapy on me instead. my weight is now coming off.if your having weight gain on the pills make sure you haven't dropped to hypothyroid or have a thyroid storm. its a tricky thing thyroid. i know i gained a lot of weight on it. also if you have hyperthyroid long enough it can cause heart problems. ask your docs about thyroid ablation(radiation therapy ) mich easier to treat your thyroid after.

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sometimes your metabolism just takes a poop on you regardless to having hyper or hypo. everyone is different. i gained 140 lbs with untreated hyperthyroid. so get it checked. i lost weight once my thyroid started acting normal.

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I just joined this community and your post caught my eye.
I had my doctor do blood tests because I thought FOR SURE i was hypothyroid because I do AT LEAST 1 hour of cardio 5-6 days a week (sometimes 1 hour, 30 minutes), I also do dog walking as a job so I walk AT LEAST 4 miles 5-7 days a week, I lift weights and I cannot lose weight and in fact have gained 12 pounds in two years. Imagine my SHOCK when blood tests revealed I was HYPERTHYROID,
I do not understand how I can be hyper and GAIN WEIGHT. Well I am in week six of methimazole, an anti thyroid, only 5 mg once a day. I also WAS taking beta blockers (atenelol), 25 mg at night, the first four weeks but I stopped those seven days ago becasuse I felt horrible. So fatigued I could barely get out of bed, had no energy and my exercise felt way too hard, was wheezing as well. I also gained 5 pounds in the first two weeks on the meds and it made me so mad because prior to starting the meds it took me two months to lose 4 pounds. Anyways, I stopped the beta blockers a week ago and wow what a difference. My energy is back, I wake up in the morning ready to go, the exercise feels better. My doctor said I could stop the beta blockers as I had never had any of the pounding heart, high blood pressure etc that often comes with hyperthyroidism. I am still taking the methimazole and have not weighed myself because it will probably only piss me off,
With beta blockers some people feel fatigue etc because they slow your heart rate down etc. But if you are having palpitations I guess you need to take them. I was not. And I DID NOT like the whole body fatigue they made me feel, felt like my body was a 1000 pound lead weight and had to take a nap every day. This last week being off them much better, They DID make me sleep better and now that I am off them I am back to lying awake at night, but its amazing how my body does not feel that deadening fatigue I had when on the beta blockers.
I am athletic and it was interfering with my exercise and I did not like the way I felt when running, cycling, swimming etc,.
However, I still have no clue how I can gain weight being hyperthyroid and am super scared of having to increase my thyroid meds and gain more. I eat right most of the time and as i said exercise like crazy.
Do you exercise? Eat right? As for me, its impossible to do MORE exercise so I dont know what to do as far as keeping the weight off. Some of my other issues are very frequent bowel movements but psyllium husk seems to help that a bit. Insomnia (tried everything to no avail for that), very irritatble and tempermental, nervous, restless, cant concentrate, get mad very easy....

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I was diagnosed hyperthyroid in july. had gained 12 pounds in two years despite rigorous exercise and usually good eating./ thought blood tests would show hypo imagine my surprise when they showed hyper.
started antithyroid (methimazole, 5 mg omce a day) and beta blocker (atenolol, 25 mg at night) six weeks ago and gained another 5 pounds in the first two weeks. (prior to the meds i had managed to lose 4 pounds but it took two months). stopped the beta blocker (doc said i could) last week because it was making me feel horrible, tremendous fatigue. wheezing etc. in a week since stoping the beta blocker my energy is fantastic, still have insomnia and other hyperthyroid issues but i dont feel like crap all the time. I swim, bike, run etc and it was making me feel like i could barely move. I havent weighed because it will just piss me off. I try so hard and to not be able to lose weight makes me very upset. I do at least an hour of cardio (sometimes 90 minutes) 5-6 days a week, i do dog walking as a job and walk at least 4 miles 5-7 days a week, i lift weights as well.
Yes hyperthroid usually lose weight and hypo gain, but I guess some hyper gain weight and docs dont really know why,

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I am also Hyper - Was diagnosed in 2010 and gained probably somewhere around 30 lbs over the past 2 years. I couldn't lose weight no matter what I did.. I tried and tried and even stopped my meds (Propanolol 80mg & Methimazole 30mg.)because I was sure that was the cause of my weight gain. I ended up in the hospital with atrial fibrillation and what they call a thyroid storm. So, went back on my medication and gave up hopes of ever losing any weight. Well, I have recently found that hope again! I've been watching Dr. Oz and have been preparing only the recipes I find on his website. I have cut out all white sugars and starches no white rice, potatoes, bread or pasta. We are rice eaters..have eaten rice with almost every meal my entire life. Switching to brown rice was tough..but SO WORTH THE RESULTS! I've gone from pushing a size 16 back into a size 12 within 2 months. Dr. Oz has changed my life. I have a fresh fruit smoothie with flax and almond milk every morning, pinto beans with (almost) every meal and even have ice cream when I really want some. I drink plenty of water and tea. The trick to sticking to it is to change it up. Dr. Oz's "Approved 7 day crash" jump started my weight loss & energy gain. You should check it out - It's definitely worth the try. I was weighing 194 lbs - NEVER EVER weighed that much in my entire life not even when I was pregnant. I am now 167 and I'm not even going to lie. I haven't done any extraneous exercise. at all. Other than cleaning the house and going shopping. Good luck!

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oh wow.i see so many saying they have gained wait with hyperthyroid..i thought hyperthyroid made you lose weight.i just got told 2 mos ago i have it.i have gained a few pounds in 2mos..im on methizole 2.5mg every other day since the 1/2 pill was still to much..so does this mean once thyroid straightened out we will lose weight? and wow hasmy appetie shot throug the roof..i eat and then30 mins later fee so hungry like ive never ate..i was 112 before i found out had thyroid prolem and f course put few pounds on whe stoped smoking for 4 mos.but now weight 126 :/
oh and does anyone else have a lymphnode on side of neck that causes pain and sweeling in throat? for yrs i was told was due to acid reflex..lol..pshh.not! its inflammation of thyroid and my sed rate was 31 high,so a arthritus dr was tryn to diagose me with a.s. ankyloses spondulitus...umm not!

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I am sorry for all of us gaining weight with our disease, I would like someone to please let me know if when off Methimazole did anyone lose any of the weight they had gained. I was 136 and i am now 176, I didnt gain anything the first 2 months as I was so sick but after that, 10 lbs/month. Both my endo and internist tell me not much and go on to say "well you know you are at that age" 49 years 5'5" and weight between 117 and 135 all my life up until this. I was not even this heavy when i was pregnant with my daughter. I want to just stop taking the Methimazole in hopes to lose this weight, I am seriously going into a depression and I will not take anymore medication. Also, has anyone gone holistic? Please respond and thank you.