EndocrineWeb Community Advice

Hyperparathyroidism, but "normal" calcium levels?

From: johnathanhebert - 4 years 13 weeks ago

Hi,

After lots of research, my wife and I believe that she has hyperparathyroidism... we have read Dr. Norman's website parathyroid.com and after learning about it, we asked her endocrinologist to measure her PTH and calcium levels... he said he would first measure her calcium and if it is elevated, then he would measure her PTH... but he really did not think that was the problem.

Her calcium came back at 9.4, which I believe is in the "normal" range, but according to Dr. Norman's website, it is possible to have those measurements and still have hyperparathyroidism. Has anyone had hyperparathyroidism, but low calcium levels? She has had 2 kidney stones, which Dr. Norman suggests could be correlated to the fact that the blood calcium levels are normal, since the kidneys are working overtime... does that make sense? Can anyone relate to this situation?

Thanks!

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I have been having the same results for almost a year. I have elevated pth 88-95 (4 tests over the last year) and in the beginning had very low vit. D. My doctor referred me to an Endo. and she put me on high does of vit. D (Oct. 2009). The last 3 blood tests have showed normal range of vit. D and calcium and still high pth. Endo. is still saying that vit. D is cause, yet I'm in normal range and she wants me to stay on same dose (2000iu daily). I am very frustrated and too damn tired to be much of an advocate for myself.
I feel your pain.

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Yes, I can relate. Fortunately, my urologist obtained the initial PTH for me and it was significantly elevated (more than double the high end of "normal", although my serum calcium was only 9.3. In addition to twin huge kidney stones earlier this year, my urine calcium levels were significantly elevated even during a repeat after making dietary changes. Endo confirmed the high PTH and 9.3 calcium again. Dr. Norman indicated that a little more than 2% of his patients had lab results like mine, and all had parathyroid tumors--I fall into the "confusion area B" part of his advanced diagnosis page on his website, and the kidney stones with high urinary calcium levels confirm the diagnosis for him. I will likely follow up with him, but I will probably wait for a couple of weeks to see one more calcium level and PTH level, and a bone density test result.

She REALLY needs the PTH numbers. Most doctors dismiss the possibility of primary hyperparathyroid disease if the calcium levels fall anywhere in the "normal" range. Dr. Norman seems to shoot straight, and if he isn't pretty sure that you have an adenoma (tumor), he will tell you.

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Kirstencarrie,

Take a close look at the advanced diagnosis page on Dr. Norman's website and compare the graphs with your results. If you still have questions, email Dr. Norman with your results. He posts a link to his email address on his website and he does answer his email.

My PTH was significantly higher than yours, I also had two 24 hour urine tests with significantly elevated calcium levels, and I had two huge kidney stones. That could give me a different response than you receive.

Good look!

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I can relate. I had normal Calcium levels for 8 years, around 10 so it never alarmed my Dr. I grew very ill, no kidney stones. I went for a rountine Dexascan with severe osteoporosis found. The Dr. thinks I had the condition for 8 years before surgery. I feel like a new person now that the tumor was removed. I did have a scan that showed the turmor.

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good luck I wish everyone with a adenoma could know how good they will feel after surgery. I will never understand why it took 8 years for it to be found by me and my doctor. I am a nurse so I kind of tuffed it out and doctored myself alot. That was not a good idea.

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