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EndocrineWeb Community Advice

Just need some advice....

From: Jennik - 49 weeks 5 days ago

Hello, I'm a 32 year old female, I've been having some health problems and I'm not really sure what's going on with me. I would just like to tell my story and see if anyone has had similar problems. During my 3rd pregnancy in 2010, I started having severe heart palpitations, these would happen day and night nothing seemed to help. I told my OB at my prenatal visit, he checked me over listening to my heart and lungs he felt of my neck and said that my thyroid was enlarged, he referred me to a general surgeon to have my thyroid looked at and he had me wear a 24 hour halter monitor. The surgeon did an ultrasound and a biopsy of my thyroid, he said that my thyroid was excessively large for someone my age and in good health. My biopsy came back normal, he suggested that I have my thyroid removed after my baby was born, but being afraid of surgery and the fact that my OB assured me this was all pregnancy related I didn't see the need in having surgery, they said everything would go back to normal after the baby came. For me that wasn't the case, the palpitations did slow down, but they didn't completely stop. Seven months after my son was born I found out I was pregnant again, and again my symptoms flared up this time accompanied with shortness of breath and chest pains. I was sent to an internal medicine doctor and was told that I also had an excessive heart rate which was possibly causing my problems, they wanted to put me on Inderal a beta blocker to slow my heart and relieve my symptoms, but because of the risks to the baby I refused the medication. Again I was told this was all pregnancy related, and within six to eight months after delivery my body would be normal again. Yet again that didn't happen, my youngest is now 3 years old about a year and a half or two years ago, I started having episodes where my heart would be racing (120-130 bpm at rest) I would get extremely shaky, nauseous, weak, dizzy I felt completely off and on the verge of passing out, my first instinct when this would happen would be to eat something sometimes it helped sometimes it didn't I'd just have to wait it out for hours it was horrible. After the 3rd episode inn a week I went to my PCP they did an EKG and blood work, I was again told that I had an excessive heart rate and was put on Inderal 10mg twice a day to slow my heart down because of the dangers of a fast heart rate. My blood work came back normal I was told the next time it happens to go to the ER so it could be recorded on an EKG while it was happening so that's what I did my heart rate was all over the place up and down, the ER doctor was stumped he said he didn't know what was going on. I was admitted over night, and had a stress test first thing the next morning, the doctor who came in to release me was just as stumped she said I could possibly have an extra wire in my heart that is sending out to many electrical impulses and to follow up with my PCP. I saw him a few dys later he was explaining to me about the electrical impulses as a possibility, but he wanted to send me to an endocrinologist well that appointment was never made instead I got stuck with a 30 day heart monitor. I have been back to my PCP twice and they never had my results from the monitor. The last time I went which was 6 months ago I saw a different doctor within the same practice, I had to start over and explain everything to her, she said it sounds like I'm having episodes of hypoglycemia possibly due to hyperthyroidism, I was told to eat more protein. Over the last 6 months things are just getting worse even with the inderal to control my heart. i'm still having episodes, I've also noticed that body temperature is lower than normal I'm never over 97.5 i recently had a cold I thought i had a fever because I was freezing and shaking but when I checked my temp I was 96.2 so I've just been randomly checking it because that isn't normal! Two weeks ago I started having an episode my friend who is a diabetic just happened to be here I asked her to check my blood sugar because the doc told me I could be low, well I was actually a little high, my friend said I was n't dangerously high but I was higher than normal. I just don't know what could be causing all of my problems I'm tired all the time I have constant headaches I just want to know what the problem is and get treatment for it I'm tired of not knowing!!! Sorry for the long post I just wanted to include everything thanks!!

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6 Responses

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At no point in your history here have they tested your thyroid levels, T3, T4 TSH, T4 free, T3 Free, etc. Insist that you have these done and if they say there is no need find another doctor who will. If you have an enlarged thyroid and it is not working, it is fighting against you, perhaps. Go with your gut. I think you already know there is "something" there not right.

Let me know what you find out. I have had flutters, hot and cold spells, dizzy spells, all to do with my thyroid. I was diagnosed with thyroid cancer in 2013. I am doing well now. :-)

Hang in there ad be a strong advocate for yourself!

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Thanks for your response! Yes they checked my thyroid levels and said my labs were normal, I then asked why I had an enlarged thyroid I was told it's just something that happens for unknown reasons. My PCP tried to put me on anti-depressants, because he thought that maybe it could all be stress related I politely declined. I do not feel as though I am under a tremendous amount of stress to the point of needing medication, that is just crazy talk to me I'm not going to take unnecessary medications! I'm almost 100% positive this is all thyroid related, it's just getting a doctor to listen to me that's the problem. I'm sorry to hear about your diagnosis, but so glad that you are doing well now!!

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I haven't been on this board in years, I just happened to be browsing and found your post. I totally understand how you feel. I had no less than 20 different symptoms, which seemed to change all the time. That was 15 years ago, before I was diagnosed with hyperthyroidism. I wanted to die, I was so

If you want a proper diagnosis and proper care you MUST see a board certified Endocrinologist. The sooner you can get an appointment, the sooner you can get a diagnosis, and start treatment, and become symptom free. Some women get thyroid problems when they are pregnant, and it goes away after. Or, it could be the pregnancy only exacerbated something that was going to happen with your thyroid anyway. Regardless, I think you need evaluation by a thyroid specialist. Please go as soon as you can. If you have to wait for an appointment to get in, ask to be put on their waiting list. Stress that you are on Inderal (so was I, after diagnosis was confirmed). You may likely have symptoms that you are attributing to something else. This can also cause mental disturbances and depression. DONT let any one tell you are crazy. I don't want you to be sick any longer than you have to be, since I was in your shoes.

Bless you and good luck!

morecatspls

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Also, don't let a surgeon take out you thyroid without a recommendation to do so from your endocrinologist. I've never met a surgeon that didn't want to operate on something. It's what they do. After you are diagnosed, on meds, and symptoms are mostly gone, you can make that decision with the help of this great new endo doc you're going to find, based on as 'll your newfound education in thyroid disorders, haha. But there is more than one treatment option, and your thyroid could well shrink on its own with proper meds.

morecatspls

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It's so good to know that I am not alone! I have been suffering with this for 5 years now. I'm going to push to get an appointment with an endocrinologist, to get an opinion from someone who deals specifically with the thyroid. I have seen quiet a few doctors who seem clueless as to what's going on with me. I'm glad to hear that you are being treated and things are good with you now! That's good advise about the surgeon I guess I never really thought about it like that, I will definitely re-think meeting with the surgeon again. Thank you so much for your response every bit of advice I can get I am thankful for!

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I am grateful to be able to help Jennik.

I've learned a lot in the last 15 years, but certainly not claiming to know as much as my doctor. However, having said that, it still amazes me how a new doctor (for other various things) will look at my labs, and say they are normal. When it comes to thyroid, it's not like diabetes, where "a little out of range" is probably OK. I become symptomatic when I approach the bottom of the range. And those symptoms can be disabling for weeks or even months, while we're getting me back in range. Ongoing blood tests every 3-4 months has been key to keeping me healthy. The way my very candid endocrinologist explained it to me, endocrinology is not a "required" rotation in med school. There is more like a couple days devoted to the entire subject. So unless they take an interest, their knowledge, in my opinion, is limited. It is found to boring by a lot of med school students. That's why I will only go to a board certified doc.

To this day, when my labs are in, I keep copies, and always know where my thyroid levels are. Be your own advocate. I'm feeling my best when my TSH is between 1.0 and 2.0, but another person may find that they feel best when it is higher or lower. What you want is a doctor who uses a combination of empirical data (lab numbers) and how you feel physically.

Please post after you see the new endocrinologist. And if you want to learn more about thyroid problems, a couple of trustworthy websites are John Hopkins school of medicine, and the Mayo clinic also has a pretty good one. You can also check out the American Association of Endocrinology.

Good luck. I'll check the board next week to see if you've posted.

morecatspls

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