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EndocrineWeb Community Advice

Crazy high number TSH 17.87

From: bskog - 4 years 33 weeks ago

I don't seem to see anybody with high numbers like mine....makes me nervous. T3 and T4 are fairly normal close to the low side but within the acceptable range. My TSH is high 17.87 (I see people talking about (.1 to .7 off) while I am 13 off. My Thyroid Peroxidase Antibody is also very high >394 and it should be <35. Does anyone else have this outrageous looking numbers??? I don't look or feel sick at all. Just went for a routine physical, retested still high.

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Hi, new to this myself, 4 weeks ago I was diagnosed with under active thyroid or hypothyroidism and my TSH was 31. I have seen comments in my research of some people with scores above 100 who don't have symptoms. I am 4 weeks into treatment with thyroxine started on 50mg but had to reduce to 25mg due to bad reaction and I am petite. I have what I consider fairly severe symptoms which seem to include both hyper and hypo symptoms, from what feel like panic attacks, painful joints and muscles,hair thinning, dry sore skin, I've also increased my body weight by 20% in 4 weeks ( which seems contrary to what the treatment should do). I hope my response helps alleviate your concerns a little, but from what I would expect is for your doctor to look to treat with levothyroxine or similar till correct levels reached.

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Hi, thanks for a reply. I also seem to have a little of both, but it makes me think that possibly its virus related or tumor (hope not). I don't have panic attacks, joints in my arms are a little sore, but livable (my thumb feels like I fractured it, really weird, do not remember even doing anything to it). Dry skin (hey it is winter)not sore though. Body weight has not really increased, hair does fall out but I would say its normal not excessive, esp. at my age 49 heading toward 50 this year. Going to an endoc. dr. before I take anything. Also doing an ultrasound. Did you do these things? Hope you feel better

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I've had hypothyroidism for 4 yrs, my TSH was 20 at one point when I stopped taking my Levothyroxine after I had my 2nd baby. I KNEW something was wrong me though...fatigue, no motivation, hair coming out in clumps when I'd brush it. Anyways, recently had my TPeroxidase antibodies checked and mine too were in the hundreds. This is an indicator of Hashimoto's disease, an AUTOIMMUNE disorder that causes over half the cases of hypothyroidism in the US. I was led to read "why do I still have thyroid symptoms? When my lab tests are normal" by Dr. Kharrazian (thyroid book.com). Other symptoms: feeling cold most of the time, insomnia, constipation, dry skin etc. You'll learn more if you read the book. Western medicine teaches to treat Hashimoto's the same as hypothyroidism (with hormone replacement Synthroid, Levothyroxine, etc) but that's not addressing the autoimmune part of the disease. Check out the website, read the book. I'm reading it now and learning so much about Hashimoto's and how to treat it. Theres a place on the website where you can look up a practitioner closest to you that follows Dr K's treatment methods. God bless and best wishes to you!

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no, do not have any of those symptoms. Read it, some how does not seem to be me, 50% max. of symptoms and they are mild. Ex. dry skin, is not bad though and(have it every winter, since child hood)hair did fall out more than usual (but only during pregnancy or maybe it was after) have no trouble sleeping (except when husband is snoring) and no constipation. I do feel cold but its 15 degrees out. And its not all the time at least not more than any other winter in New England. Weird, not sure what to do

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I don't feel well, but my numbers are below:

TSH 17.38
Thyriod Peroxidase Ab >1300
Antithyroblobulin Ab 90
T4 Free 0.74
T3 Free 2.7

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Mine are VERY high compared to yours then.
TSH is 24
fT4 is 13
Antibodies are 6300

I'm only 20, was diagnosed with Hashimoto's a year ago and am only on 50mg of Thyroxine and struggling to find answers.
I feel horrible! Barely sleep, achey all over, nausea, headaches, the lot.
I go outside for more than an hour and come home with a new bug.

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My THS was 94.870 explains lot of health issues I have been dealing with.

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Your tsh isn't that high, don't worry. Mine went up from 19.8 to 57.0 in 8 days and I'm still alive! My tpo antibodies were above 600 as well. I have hashimoto's though, so you might want to get tested for it. Also, it could be acute thyroiditis which can be triggered by a virus, but will eventually settle. I ended up losing 5% t4 daily when my tsh was SUPER high and I definitely had symptoms so if you don't then just keep an eye on it.

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This is response to "Shaky Girl". I have been told it takes a couple of months after starting medication to see results. I felt like I noticed an improvement much sooner. I was placed on Levothyroxine initially, and had a building bad response (fluttering, dropping sensation in throat, rapid heart beat). Once I visited an endocronologist, I was immediately taken off generic (Levothyroxine) and placed on name brand (Levoxyl). The symptoms ceased.
Also, I have had a swing from Hypo to Hyper (now daily alternate lower level dosage with higher). Leveled out now.

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