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EndocrineWeb Community Advice

Extreme fatigue, no answers and "normal" test results.

From: Melinda33 - 5 years 18 weeks ago

I have been suffering for the past two years with extreme fatigue, rapid weight gain, with difficulty losing weight. Currently I have have been experiencing what seemed like a UTI, but found through lab tests it was not a UTI, had an Ultrasound, all normal, and they are sending me to Urology/Gynecology to see if they can figure it out. I have all the symptoms of hypothyroidism, but none of the lab tests say that is what it is. I am 33, I weigh 175 pounds. I have gained 20 pounds in the past year, and the scale doesn't budge. I have always been active, use to run daily, and now it takes extra effort to even find the energy to attempt exercising. I'm cold all the time, although at night I will occasionally have night sweats. My hair is dry, my skin is dry, I am constantly tired, constipation, lack of sex drive, eyes are sensitive to the light... the list goes on. I am beyond frustrated. I have spent so much money trying to figure out what is up, just to be asked if I need anti-depressants. I know in my heart I am not depressed and there has to be some logical reason why I feel so crappy and exhausted every day. They have tested me for all sorts of things ranging from adrenal fatigue, cancer, fibroids, thyroid testing - including T4 and other uptake tests.

I'm at a loss, it seems I have every symptom except my body seems to tell Drs I am normal when I don't feel normal. I am not depressed, and could take the prozac they tried giving me to help with Energy but I know it's just covering up whatever is going on... I'm frustrated, and upset by all of this. I'm 33 and my life is passing me by because I can't get the energy to do much of anything, go to bed early, drag all day in a mind fog and just want to sleep, and go to bed early weeknights and take naps on weekends.

Life is great other than this... I was hoping to find a functional endocrinologist in my area of NH but haven't seen any online... I am at a loss, I am grateful for any help or advice anyone has or if this sounds like something that happened to you or if you are an MD and know what this could be, please help.

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I know exactly how you feel! Question for you... have they ever tested for THYROID ANTIBODIES? In my case I was finally diagnosed with Hashimoto's Thyroiditis which likes to cause every system to read "normal" frequently. If you haven't I would strongly suggest making that your next step. What parts of NH are you around, I might be able to suggest a couple of wonderful (and willing to explore) doctors!

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I have hypothyroidism and one of my physicians gave me a book to read: The Woman's Guide to Thyroid Health by Kathryn R Simpson - it is an eyeopener and might help answer many of your concerns. The author also had many tests with normal indications but the tests are not always effective. It may help you to read this book.

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Reading your post sound exactly like what I went through a year ago. I was extremely tired and fatigued to the point of sleeping 14-18 hours a day. My primary care physician tested me for anemia, cancer, mono, thyroid, etc. Kept telling me everything was normal. A co-worker had me read a book by Dr. Ridha Arem, "The Thyroid Solution". I am now seeing Dr. Arem in Houston, TX. My TSH levels were coming back in the "normal range". Mine was 2.02, however, Dr. Arem's explanation is that not everyone has the same normal range. Mine was off enough to cause me to have all the classic symptoms. The worst was my memory fogs. Highly recommend this book and this doctor.

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Thanks everyone, your support is really appreciated. My current state has worsened, I think I have finally found a good Dr... who practices functional medicine and seems more caring and willing to consider all things before dismissing me like the others have. I am having problems at work because i'm so exhausted and in a brain fog that I am making mistakes I wouldn't normally make. I feel like a completely different person, I am fighting with my boyfriend, he hasn't been supportive and seems to think it's all in my head, which has been hard. I feel like I'm on the verge of a complete breakdown, my life is falling apart. I just had blood tests done a week ago, including T3 uptake which all the other drs did not order... and I found out sometimes can show differently than the other tests that show normal... I'm hoping I have some answers tomorrow. I am now depressed although that is not what the chief thing going on is... I know I am NOT crazy, but I do at times feel and freak and worry I could be losing my mind. I'm so sad, my boyfriend has threatened to leave me, and everything in my life is in a dark place right now, compounded by how I feel, how little I have the energy to do, how little I can cope with and I've dealt with this a long time, but now I am being consumed by a sadness in addition to the other things I have mentioned... it seems like it should be so obvious there is something wrong, but it's been a long time coming from a Dr. Please keep your fingers crossed for me and hope that I find something out tomorrow. My Dr would not tell me the results over the phone, and I was told this was her practice (by her nurse) but it does worry me. I'm hoping the dark days will soon be behind me, I just can't see how I can go on this way. My kids will hate me and I'll be alone. I feel like no one gets what I am going through so it is comforting to know I am not alone... Thank you!

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so... it turns out even though my TSH and T4 were both perfectly "normal" as in the "normal range" my T3 was low. I also have some signs of inflamation on some of those blood tests(forget the names for each) We are going to try to boost my seratonin levels first, and then in two weeks start on a T3 drug. She told me I should feel more energy pretty quickly if that is what it is. If not I'll feel extremely anxious and if that happens to stop it since it was low but no so low it was really worrysome she wasn't sure if this is it, but I have hope it is... especially since the previous Drs I have seen didn't test me for T3 only T4 and TSH.... I finally feel I am in good hands. She makes me hopeful for the first time in a long time, she didn't just tell me it's all in my head, and she LISTENED... should be customary in medicine, but it is sooo rare to find. She also has had me taking magnesium at night time and even though it hasn't helped my energy levels my muscle cramps seem to be calming down and I am able to stay asleep all the night and I am out like a light and definitely see a difference in taking it. If it turns out these things get me back to where I was I will be so grateful... It is like I have been watching my life unravel before me, falling apart so young with no answers, and it's like I have been losing my mind, my body driven by someone else out of control... and maybe I have hit the bottom and I am working my way back to finding myself, the REAL me, the happy, productive, energized, able to do things me again! SO hoping this does it. My thoughts and prayers are with everyone else battling for their health.

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Hi Melissa, just came across your post today and wondering how you are doing? Any results yet? Thanks. Val

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Nothing has improved, I have since found out I have obstructive sleep apnea. I have pushed myself to exercise, haven't lost any weight and was getting into working out but losing ground, my muscles have no energy. I'm so. I am so very frustrated. I love running, when I try to run I fatigue very quickly, I can't take much more of this, had bloodworm do e again and alms normal... I want to do so much and can't, no stamina or strength, now I'm 36 been dealing w all this for so long and still no answers, they think it could be related to my sleep apnea but it just doesn't feel that way, it's confusing, although I now have a nice dr who I like hearing everything is norm when I feel the way I do is really hard : (

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Wow, reading this was almost eery- it's so similar to what I'm going through. It has been an eye opening experience, falling through the medical cracks. I have been diagnosed as having "probable" CFS/ME. Essentially the catch-all term for, you're extremely tired and nothing else is wrong that we can find, so fine, we'll give you a half-hearted diagnosis so that you'll quit bugging us and let us get on with writing prescriptions. I know there are caring doctors, and everyone does their best, but most doctors do NOT like conditions they don't know how to treat and/or don't really believe in in the first place. The bright spot: if you are able to pay out of pocket or go the HIPAA route, holistic doctors are much more open minded and willing to work with you on these less understood conditions. I wish I could tell you that I've discovered a magic cure, but that is not the case, it's still a work in progress. But I just wanted to say, there is always hope, and we WILL get through this. You are not crazy, delusional, or a hypochondriac. You know yourself and what you are going through is REAL. Good can come out of even CFS/unspecified life crippling fatigue. All the things in my life that aren't really important have been stripped away. My eyes have been opened with compassion to those who are misunderstood, left behind, discounted and to have to fight the hardest when they are the weakest. I salute your courage, continuing on when everyone else questions you, struggling for the health you know is still possible. Keep the faith and if I ever learn anything that I think might be able to help I will try to post it here. Sorry if I got a little soap boxy here :)

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One of the most satisfying feelings in a person's life comes from having a productive day. A productive day does not have to mean several strenuous hours of difficult work. This cost-effective treatment can help a lot for the development and cure of the patient. Do you fall to the trap of assuming that your single purpose in life is to be productive? Discovering your personal bliss may include accomplishment, but the full, balanced scope of your existence may include times where being lazy is just as appealing.

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ttp://digestive.niddk.nih.gov/ddiseases/pubs/celiac/

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Hi! For the first time in about 7 years I feel like I've finally found someone who might have what I have. I wake up everyday feeling like my whole mind, body, and spirit was deprived of oxygen. I have headaches everyday that nothing seems to solve, my eyes throb all day every day and are extremely sensitive to light, (I wear sunglasses at my desk all day). My metabolism is literally at a snails pace. I'm down to one or two small meals a day and I still feel like I'm gaining weight. I never really drink because when I do it makes me feel awful (but I do sometimes anyway because I feel awful even when I don't drink, it really boils down to what kind of awful I want to feel). I am depressed, but not in the traditional sense. I have every reason in the world to be happy but happiness requires energy and cognitive function, two things I've been severely depleted of since I was 20/21 (I'm 27 now). I've had every thousands of dollars of tests and none of them showed a hint of anything; CT scans, multiple chest xrays, pulmonary function tests, blood gas analysis, sleep study, countless blood/enzyme tests, and nothing. Not a damn thing. I also have a deep, dry, hoarse cough that never produces anything and happens even when I sneeze (I've never been a smoker). I also have a very tight chest, as if its clenched. I can never take a full deep breath and I always feel this 'knife in the back' feeling behind my right shoulder blade. I've seen a rheumatologist, pulmonologist, neurologist, chiropractor(s), and physiatrist. I've had myofascial release therapy and acupuncture and after several sessions each, I didnt notice the slightest difference. I've always been active and was involved in athletics all my life and was in the military after high school/college. I've seen therapists and taken all the anti-depressants, anti-psychotics, and anti-anxiety meds they prescribed me and they all generally made things worse. On top of all that, my primary care physician insists that I'm delusional. I feel like I'm living in my own personal hell and no one can even begin to imagine the agony that accompanies my every move. I never go out anymore and have lost touch with a lot of people. I dont know what to do anymore and I feel like I'm on the verge of a mental breakdown. I literally have not had a legitimate, refreshing nights sleep in about 7 years and I feel like I'm actually starting to lose my mind. I acquired a cpap machine and bought a new face mask for it and after several nights of trying to make it work (I tried for months straight), it was put back on my shelf. I take it out every now and then but the results are always the same: didn't work. 'Nothing works", I feel like that's becoming my life story. I'm not sure if what we have is the same, but you're the only person I've ever known of who had such similar symptoms. Also, when I was reading your post and was realizing that not only do we have pretty similar conditions, I was elated to see that you live in NH. I live in Bedford fyi. I hope your doing well and would love to hear from you.

Take care,
Alex

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I feel like I relate on so many levels to all of you. I have been feeling absolutely drained lately and I am borderline hypothyroid. I also have been diagnosed with Fibromyalgia and Myalgic encephalomyelitis/ME in Canada or CFS elsewhere. I am about at the end of my patience with myself and Doctors. I just wanted to let you all know that through an amazing immunologist I found out that I do not make IgA which is the antibody they measure to determine if you have a Gluten Allergy. So therefore all the Celiac tests were coming back false negative. If I do not eat Gluten I feel better and think that my recent down spiral could be that I have accidently ingested gluten in something. If I had not known about this genetic condition that I have I would have continued to eat Gluten. I am off to see the endocrinologist at the end of next month and I am going to beg her to please prescribe something because I have gained 10lbs this month and if I am on the borderline of hypothyroidism perhaps I need something???? (((hugs)))

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I am a fellow ME sufferer and it can be absolutely maddening at times. I feel as if I have lost my life and am going through the motions. I hate that people think I am depressed....well wouldn't you be depressed if you lost your job, you can't do anything much ~ getting up every day and getting dressed is a huge effort and achievement! I have been reading about LDN have you heard of it or tried it? I have seen so many doctors and alternative health practitioners it makes my head spin. I am grateful to be on permanent disability but I really would rather have a life ~ I can't even remember what normal is anymore its been so long :(

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Hey y'all! So glad I found this I realize some of the posts are 2+ years old but I'm desperate!!!!!! So I had my little boy 9 months ago and after I had him I developed celiacs disease, before they diagnosed me with celiacs I was sick an they put me on antidepressants- well after fishing out it was gluten making me sick I straightened up my diet and decided to come off of antidepressants... A lot easier said then done- I tried and got the brain zaps and became extremely sick so I got back on them- while I was on the after about the 3 month I started geting REALLY tired all the time so I stayed on them about 2 more months gradually decreasing the dosage to ween off- I've been off about 2 months now and AM STILL so tired all the time! I've had CBC blood tests done all was normal I've had thyroid checked an vitamen levels all is normal I've been getting headaches and my eyes always feel so heavy even have a ct scan of my head- normal. Everything always comes back normal but I can't freaken hold my eyes open all day and I have ALWAYS been an active person- I have another doc app Wednesday to MAYBE get some answers- would love to talk to someone who has been through this! I will even give my phone number so we can text or my Facebook name- just would be nice to have someone who has "been there done that" r going through it! Thanks!! Xoxo

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Hi, I have hypothyroid symptoms but I don't understand why my post hasn't been replied to. There are people on here replying to them but why not mine?

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This is exactly what I have been going through for over 10 years. I used to have terrible migraines (later determined to be caused by a food sensitivity) and we always thought my fatigue/fog/cold/extreme inflammation/etc was caused by the migraines or migraine medications. In 2009 I found out that dairy (caseine protein) caused my migraines, so I cleaned up my diet and successfully eliminated all migraine medications. My headaches/migraines stopped, but my other symptoms persistet and have been steadily increasing until I am nearly unable to work or function for many days out of each week. My first doctor - useless. My second doctor - sympathetic...but unwilling to do more than run basic tests. I got frustrated and took a loan to see a naturopathic doctor (naturopathic doctors are not covered by my insurance).

I found a highly recommended individual with a doctoral degree from one of only 4 doctor of naturopathic programs with federal accredidation, etc... He discusses the cost of each test, why/how he chooses what tests to run or life-style changes to make, how these approaches are viewed by mainstream medicine/MDs, etc...So I know that I am working with someone with good training/knoweldge who has my interests in mind (not his wallet). (Warning! Before taking this route, DO YOU HOMEWORK!!! or your will waste a lot of time and money for nothing).

After less than 6 weeks...I have some answers, but not all. One (tested by my naturopath but found by another family member) was a compound genetic mutation in the MTHFR gene that inhibits the methlyation process of folic acid. Basically, my folate levels were tanked. In addition, B12 deficiency goes along with this...somehow...my B12 was tanked. After 3 weeks of a methyl B12 supplement...my energy is back even though I still have, what I call, fatigue spells. This one thing has taken my symptoms back to the level they were at 2 years ago. They are still a problem, and we are still looking for answers, but life is more manageable. For some reason, MDs never think to check B vitamin levels until someone is critical! Otherwise, I would have found this issue months ago!

I also was tested by my MD for thyroid issues - all normal. My Naturopathic doc did a more comprehensive test - still normal. He also did food sensitivity testing (IgG, IgA) - which are not recoginized by mainstream MDs/allergists. However, my naturopathic doctor explained this fact to me and also explained that he wanted to use it as a baseline for an elimination diet. In other words...he is cautious and up-front about the results and the fact that they may not reflect a true food sensitivity. As I know that I cannot have dairy products without causing splitting headaches/migraines...and that does not show up on ANY test ever done...I was willing to try something unconventional. I am currently on an elimination diet and after a few months we will try to reintroduce the foods to see what impact they have on how I feel.

My issues are not gone, but they are getting better. More importantly, now I have hope. My naturopathic doctor isn't done...we are just waiting assess how these recent developments have changed my symptoms, and to find the next course of tests or life-style changes that are needed to determine what factors are affecting my health. My reason for sharing this is because I have struggled for years with doctors who tried to diagnose my symptoms as a result of depression or anxiety...or who just won't do anything. I am hoping that something I have said will trigger an insight that will help others on this forum to find answers to their own health.

You can do this. Don't give up. If your doctor can't/won't help you...find another one...and another one...until you get the help that you need!

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I just found this forum, and I completely understand how you feel! I don't know how to live like this for the rest of my life. I was doing great until 2009 when I had Lasik eye correction surgery, and immediately began having migraines that were a daily thing and took about 2 years to find a good doctor. They prescribed me Effexor, which seemed to take my migraines from 31 days a month to about 3-4 a week. I think it was still a continuous migraine but they were less severe, and the Immitrex would now take it away for some relief. Once I found (on my own) specific ingredients that can cause migraines, I steered clear of those and noticed that I could go a good week without a migraine. Light sensitivity is still an issue and can no longer watch movies in the theatre or on plasma or lcd tvs. I can't go anywhere without my sunglasses.

I was doing okay, I think, though its hard to remember! until about January 2013 when I noticed that I was having huge difficulty getting out of bed and it would be about 1pm. People told me it was just seasonal depression, but it never lifted.

I am constantly exhausted to the point where getting up to use the bathroom feels like an insurmountable task. If I go downstairs to let the dogs out, I feel like I have to be laying down. Even sitting up on the couch is too tiring and uncomfortable. Going back upstairs leaves me weak and dizzy. I have ZERO motivation. Brain fog. Poor concentration. Forgetfulness. My limbs feel so tired and heavy I can barely lift my arms in the morning. I feel better around 7-8pm, I have issues sleeping at night, with my mind racing even though I'm tired, and around 5am is when I can finally feel like I fall asleep and don't feel restless. I have a lot of anxiety too.

I stopped taking the Effexor in May, as well as birth control. I had tried taking some supplements to see if I was deficient, but noticed nothing.

I am now taking 30mg Adderall, which definitely helps, but I think that dosage is too low now that I've been on it for a year. It helps with motivation, energy, and concentration so I can get school work and house work done, but it's only masking symptoms. I can't take this stuff forever!

I'm now on some Prozac and take a supplement SAM-e which helps with the anxiety. I switched to sea salt and have been eating more salt to see if the fatigue dissapates. I had 2 decent days last week and didn't take adderall. I got things done. I was hopeful the salt increase was the cause, but then I was as tired as ever again. GAH!

All the bloodwork comes back normal. I saw an endocrinologist who told me during the first visit that it was unlikely that any thing would show up on the tests. I had more bloodwork done and the growth hormone came back sky high (above normal range), so he had me do it again....and it came back normal this time. He told me it's all normal and he doesn't know what else to tell me to do.

I DON'T KNOW WHAT TO DO!!! I begin student teaching in Jan. I have to start getting up at like 5am. I don't know how I am going to do this!!! Everyone blows me off. I just get told to exercise, sleep 7-9 hours and always during the same time, and eat healthy. I was exercising, and then I'd feel just awful and it would set me back for days. I'm at my wits end!! I sorta feel better knowing it's not "me" but feel hopeless in the sense that so many people are experiencing the same lack of support and understanding! If anyone ever figures out a cause that dissolves their fatigue, please let us know! Good luck to everyone.

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Hi all, my name is Bobbi, I am a 25 year old female and have had remarkable similar systems. The week of november 20th, 2014, I left work early because I was having chest pains and my vision left me. From there I went to the ER and they discharged me with a "migraine." I was on Lamictal previously almost 2 months , stopped that 2 weeks before this episode of work. Tried tapering that, didn't work. Stayed off it because I had a 2 month long sinus infection, at one point my lymph nodes were so swollen, doc had to prescribe me levaquin, because I am allergic to almost every antibotic out there. After the sinus infection, and rashes from the lamictal, they put me on trileptal. Again, made me worse. Body convulsions (while conscience), head jerking, migraines, lapses in memory, brain fog, facial pain, episodes of all these happenings, felt like I was in no control of my own body. After that was stopped, they put me on neurotonin, that didn't work, in fact it was the worst one I was on, because I had an episode, where I was talking to my work HR, and immediately forgot who I was or where I was at, it was so scary. After that I went back to the doc and they took me off of it, and wrote me off as being "hysterical," and all my delusions were from stress. Yeah right, I was normal and active when all this happened, they are out of their minds. Because everyday all these symptoms happen and it gets worse. My eyes hurt so bad now, they are really dry (taking visene regularly), and I get abdominal cramping around my liver area, on my lower right and lower left, in my abdomen. Not to mention, my menstrual cycle is way off and too early. After that, I made an appointment to see an allergist. He ran a ton of blood work including, full metabolic panel (all normal except sodium levels, were a bit high, but nothing to be concerned about they said), thyroid panel (everything normal except thyrogloblin was low, but waiting on him to call me back about it), had other blood work drawn for cell counts and function (all normal), had eeg test done (normal). What I don't understand is that my symptoms are still there and are worsening, but all my tests show normal. They can't figure it out, and dismissing it as stress or that its all in my head, all three of my doctors have humiliated me in the office and in front of my husband. If I do not hear from my allergist in the next month, I will be paying out of pocket for a specialist in my area, because I cannot take this. My family has little money, even less since my husband is the only one working, even doing dishes feels like running a marathon, I have depression, but I know it is not that, because I've had it for six years and was fine before all this happened. I know what I am experiencing is real, I am not the same person I was, what I have is painful, I am unable to work at only 25 years of age, and doctors cannot figure out what is wrong with me, but none of this is solely stress. Whatever I have is debilitating, and its driving me crazy, that before this, i was healthy and active. Now, I can't even do basic things, I have bad episodes of body convulsions and body jerking, extreme fatigue, left body and all over body pain, vision is bad, my eyes hurt, my face hurts alot, and even showering can set off my nerves (I get a crawling sensation afterwards and can actually trigger body convulsions). I hope I can find something out soon, doctors telling me that I am crazy is making me angry and upset and not feeling very hopeful about my situation.

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Not to mention, I have had steady weight gain, and significant hair loss since this has happened (originally lost weight due to my birth control pill mononessa), and also had thick curly hair, and small clumps just fall out in the shower, its very scary.

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I've read your post and many of your symptoms are similar to mine. Have you found out what is wrong with you or did you come any further in your search? If you didn't, you could have lyme's disease? I've posted a discussion too, maybe you could read it. I hope you are doing better.

I don't know if Alex (undiagnosed) is still around, but I have the exact same 'knife in the back' feeling. Have you found out what this might mean?

Leona

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Hi Melinda - I have these exact same symptoms and went to the doctor with "normal" blood test results as well. I've been researching the medications I'm on and I want to try to get off one or more of them. Are you/were you on birth control when you felt this way?

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Ok, first off I am not a Dr. , but after reading your symptoms along with others I may make a suggestion. Have you ever been in a wooded area, mountains, anywhere heavily wooded? Ticks are everywhere. When we walk outside everyday we take a chance of coming in contact with one. People dont realize the damage one tick can actually do, but it can. Doctors cant even test for it. They may take your blood and send it off for a "lymes" test, but only if it is active in your body will you test positive. My guess would be since you have under gone so many tests at some point you have had an antibiotic which could have helped decrease your symptoms. If not you did not take an antibiotic at all and were misdiagnosed multiple times. See with Lymes if you dont get at least a 2 week dose of antibiotics you are in so many words are screwed. That is your only saving grace in the beginning... Some people get a bulls eye rash, which is what my husband had. He was only given 5 days of antibiotics. Lymes has over 100 symptoms fatigue being a major one! Lymes sits dormant in your body it never goes away regardless of what a doctor says. People will tell you your symptoms are all in your head, but they are not. They are real and untreatable. The only thing you can do is change your lifestyle. Eat clean and NO SUGAR even though your body craves it. Lymes feeds off of sugar and you will feel the effects if you consume it. Bread is another terrible consumption with lymes. Watch the movie under my skin. That may answer many questions for you. They have even questioned if it was transmittable from your partner. Lymes symptoms can be helped with proper care of your body but the disease itself cant be cured. Research it, reach out to people with it. Get educated! Its not in your head, its very real and it can be fatal. After seeing your tests came back ok this is what lead me to this conclusion. Ive lived with it and know how frustrating it can be getting no answers. Please just research it to see if this could possibly pertain to you...

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I have not gotten a 100% diagnosis but I came back positive for anti-thyroid antibodies along with deficiencies in sodium, calcium, iron, and magnesium. They also found a cyst in my pineal gland and a cyst on the front part of my brain, so I feel that has a lot to do with it. I'm going to a specialist to see if I can get them removed and on with my life. I haven't been tested for lyme disease but my allergist is going to, as he thinks I also have a gluten intolerance. I'll read yours, thanks for the reply.
Bobbi

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I am 56 years old and have been suffering the same symptoms as you, since I was 30. I have been to many many doctors, and either they say 'Everything looks fine' and prescribe psychotropics, or they say 'let's try some tests' but before I can get the results, they're gone(as in moved away, or changed which insurance they take) I have been on Medi-Cal(medicaid) since I was 33... and can no longer work since I turned 36.
Believe me, I feel your pain, and I am just as tired of this run around.

To be nobody but yourself--in a world which is doing its best, night and day, to make you everybody else-- means to fight the hardest battle which any human being can fight; and never stop fighting.

- EE Cummings, poet

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I don't know if anyone mentioned this already, but these symptoms are very similar to those I was having while I had the Mirena IUD. I had it for 7 years before the symptoms worsened to the point that they were very noticeable. I had the IUD removed and instantly felt a bit better. It has taken three years but I feel I am now almost back to normal. No more thin hair, weight gain, lethargy, anhedonia, or lack of sex drive. I still am cold all the time. I post this here for two reasons-one, maybe some of you have this IUD or are on birth control. Two, I think the fact that sex hormone changes can mimic hypothyroidism is something worth researching. My thyroid levels were always normal, but I had so many symptoms of hypothyroidism it was ridiculous. Perhaps there is an interaction between estrogen, progesterone, and thyroid function...maybe there are other tests that examine sex hormone levels...good luck and I hope life is improving for all of you.

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I used to take the Mirena IUD too. It caused me all sorts of problems - weight gain, oily skin, migraines. So I came off it and then went through fatigue, dry eyes, weight gain, no migraines). This was all 15 years ago when I was aged 40. My periods stopped and my doctor told me was going through the menopause. Blood tests showed my thyroid as normal but that I was lacking in luteinizing hormones. So I took a product called Eye Wise (I am from the UK so don't know if it has the same name in the US). Each tablet has 10mg of lutein and is good for dry eyes. My dry eyes stopped and my periods came back within a few weeks. I am now two years into my proper menopause aged 54 and I have started to suffer intolerably dry and heavy eyes. Also I just want to sleep all the time. I have just had blood tests done - my blood count is normal, my glucose level is normal and my liver and thyroid function are normal. I am wondering if my luteinizing hormones are low again so I am going to try a lutein supplement again. Incidentally, like someone here, I had laser eye surgery done 10 years ago and since then, every so often, I suffer 'flashing lights' but without migraine pain. It seems to get worse when I have strong coffee without having eaten.

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If you're still feeling tired, please have your doctor test for FERRITIN. You can not be anemic and still have low iron stores. Your ferritin should be 70-80 but anything below 40-50 will make you really tired and cause lots of other symptoms.

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In reply to Blondieee, the thing is, as soon as I feel overly tired, I always take iron tablets. This time it had no effect so I saw my doctor who made me have blood tests re a possible underactive thyroid. I was later told by my doctor's practice that my blood test results were normal. However, it has recently transpired (following a visit for loss of hearing) that my thyroid function is actually 'borderline' - but they never told me that initially. So, since my doctor doesn't want to prescribe anything, I've researched on the internet and found Tyrosine tablets for thyroid function. Have been taking these for a week and I feel so much better.

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Let me share my experience. Same sad story. Normal everything. Then, I tried "thyroid support" this supplement from gaia that I found at whole foods. It took it because I was basically desperate and down the the point where I was just going to try anything. I took one of these at 3:00 in the afternoon and pow! My body got warm, my mind focused, my feet and hands stopped aching. You do have to take these on an empty stomach so I put two by my bed side table and pop them first thing and lay back down for 20 minutes. Then another about an hour after lunch. Then, I'm up and alert and ready to go. The crazy thing is my dr still thinks I'm crazy and it's all in my head. I guess, I don't care what it really is. I feel 100% better. I don't know if it will help anyone here, but I thought I'd share.

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Melinda33 have you found any answers? Although I'm a little older my life is a mirror image!!

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